My beautiful boy became bilaterally paralyzed in his arms on Mar 21 at 12 months old. He had a Chiari Decompresssion that night and we are fighting our way back to using his arms. We still do not know what actually caused the paralysis. He has had several complications since the surgery.
To say there is a special kind of hell that we are going through is an understatement.
A little about me I grew up with a sister who had multiple birth defects and medical problems. My son was on the exact same floor with the same neurosurgeon as my sister. I battled IF and multiple losses due to immune related problems, before I had my first miracle in 2013. Ds1 came along due to some amazing doctors in 2015 and DS2 arrived April 12 2 days after DS1 came home from the hospital.
6 m/c, 2 IVF w/CGH,1 IUI, TI
DX: Anovulatory cycles,Implantation Dysfunction, APA
High TNF, Low NK Cells
Treatment:Humira, IVIG, Baby Aspirin, Lovenox/Arixtra, High dose Folic Acid, LIT Treatment Mexico
1 Miracle born Aug 2013 Premature
1 Miracle born March 2015 39 Weeks
Miracles brought to me by Beer Immunology
My beautiful boy became bilaterally paralyzed in his arms on Mar 21 at 12 months old. He had a Chiari Decompresssion that night and we are fighting our way back to using his arms. We still do not know what actually caused the paralysis. He has had several complications since the surgery.
To say there is a special kind of hell that we are going through is an understatement.
A little about me I grew up with a sister who had multiple birth defects and medical problems. My son was on the exact same floor with the same neurosurgeon as my sister. I battled IF and multiple losses due to immune related problems, before I had my first miracle in 2013. Ds1 came along due to some amazing doctors in 2015 and DS2 arrived April 12 2 days after DS1 came home from the hospital.
I'm very sorry you are having to endure these hardships. Feel free to vent here anytime you need to! T&PS to you and your family.
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