Can I get help with IFSP communication outcomes

[chickypoo2468]

for a child that doesn't speak, can't sign, and doesn't really communicate at all? He cries but all cries are the same. No pointing, he only rolls so he can't lead you anywhere. It's a fun game of "keep moving him around and trying new things til he seems happy"

I'm guessing at 18 months actual speech/sounds do need to be incorporated into his goals, and I still want to work on waving. Am I wrong in thinking waving would come before actual signing? I do try to notice if his body language signals anything meaningful.

I'm working on switches but I need goals on this because I'm doing it on my own so far. I did ask for the STs help to get switches funded.

So far our ST just sings to him and tries to get him to make any sound whatsoever before giving him a ball. She keeps signing "more" to him but it's not the agreed on sign (he just swipes at whatever is there in front of him for more- which is why I got a button that says "more" for meals. But he seems to not be able to differentiate the button from anything else so it's hit or miss). The SC isn't all that helpful with making goals so I need to have an idea of what I want to happen.

I know there isn't an IFSP list like there is for IEPs so any help is appreciated.

[toastie]

For us we did a lot of ds1 will mimic facial expressions, and encouraging repetion of consonant sounds like mama mama and bababababa. My boys are 6 and 4 and still nonverbal and can't sign.

You could also say that ds1 will attempt the sign for more with moderate assistance, etc. you can put sign language goals in, or ds1 will access a talking switch with assistance etc

And waving and sign language can be worked on simultaneously. Our friends daughter is deaf and has asd. She can sign like 400 things and sentences. But she doesn't wave.

My kids don't wave but my youngest can approximate more with help.

[chickypoo2468]

See I don't know that he can see facial expressions :/
There is no mimicking sounds at all so we can work on that.
I just figured waving was large motor and would be easier, good to know that's not the case. I think maybe he has some sort of motor planning issues and definitely has coordination issues and I really don't think he is able to sign. He only uses his hands by hitting or picking things up with his entire hand, and if he does try to intentionally use them he fails.

[chickypoo2468]

Also, he doesn't follow 1 step directions yet. He's hard to interact with when it involves give and take.

[chickypoo2468]

Oh and I like the switch wth assistance one. Sorry my posts are so choppy, it's busy here right now lol

[toastie]

My kids don't follow,1 step directions or mimic anything Either.

Ifsps are a lot of trial and error when you have a kid that's not working on age appropriate goals because they're so far behind.

My kids have had ifsps since month 1 and ds1 first goals said to be sitting independently. 6 months later, sitting independently. 6 months later sitting independently.

Our first state was terrible, I felt like as parents we wrote the ifsp. Where we are now we are members of the team and all the therapists and coordinator weigh in on goals and services.

[chickypoo2468]

Feb 1, 2017 19:49:42 GMT -5 toastie said:

My kids don't follow,1 step directions or mimic anything Either.

Ifsps are a lot of trial and error when you have a kid that's not working on age appropriate goals because they're so far behind.

My kids have had ifsps since month 1 and ds1 first goals said to be sitting independently. 6 months later, sitting independently. 6 months later sitting independently.

Our first state was terrible, I felt like as parents we wrote the ifsp. Where we are now we are members of the team and all the therapists and coordinator weigh in on goals and services.

Omg did you live here? I swear the first meeting was turning down every goal I suggested because they weren't actual goals, but they wouldn't tell me what constitutes as a goal. I feel like the IFSP is just a formality and no one actually cares about it.

ETA and by "first" I think I mean "all"

[mrsbuttinski]

chickypoo2468, would a PECS approach be worthwhile? Or is his vision too poor? It seems counter-intuitive, but sometimes kids become more engaged in attempting to communicate once they've had some success around it.

www.pecsusa.com/pecs.php

[chickypoo2468]

Feb 2, 2017 7:11:34 GMT -5 mrsbuttinski said:

chickypoo2468, would a PECS approach be worthwhile? Or is his vision too poor? It seems counter-intuitive, but sometimes kids become more engaged in attempting to communicate once they've had some success around it.

www.pecsusa.com/pecs.php

This is what I'm hoping to do one day.
I can't tell if it's his vision, his coordination, or his mental ability that is the main issue in this area.
Like, I have a Scout dog that is switch activated. When the song is over he hits around semi-randomly until he hits the switch. He knows he has to hit something but it's like he's not 100% what. It's a huge red button so he has to be able to see it.
But then I see him reach for and grab toys all the time.
If he tries to put his hands to his mouth at mealtime he misses and gets his chin or closer to his eye.
But then I recently found out that nystagmus makes them unable to differentiate faces. I know 3D and 2D are not the same and I'm afraid to set him up for failure.

If we can get the switches I want I do want to try putting pictures on them. And there's a spot for an actual item too so maybe that would help. I don't know where to put them though, other than sitting them right in front of him at his high chair. I don't see him rolling across the room to activate an "eat" switch.

Sorry, I realize that I'm just rambling now.

I just wish someone could tell me what exactly is happening since he can't

[greysonsmom]

chickypoo2468 if you're on instagram check her out

http://instagram.com/p/BQBAcH8gFDw

maybe some of the techniques she uses could be helpful.

[chickypoo2468]

Feb 2, 2017 11:49:24 GMT -5 greysonsmom said:

chickypoo2468 if you're on instagram check her out

http://instagr.am/p/BQBAcH8gFDw

maybe some of the techniques she uses could be helpful.

Thanks, I'll check it out