Oh my goodness, so cute. I love that he's found his hands...definitely looks like he's up to something!
I just saw the most recent updates; you are a kick-ass mama and you will get through this. I'm just so sorry that it's so hard and is taking awhile. Big hugs to you and M.
I'm sorry you guys will be in the hospital for a while. I'd say try to stay strong, but when you post updates, I already know that's exactly what you're doing! So for now I'll just say to always remember that you're an awesome mom and Monty is lucky!
Post by jubilantsquirrel on Apr 6, 2017 11:21:17 GMT -5
I wish I had the right words for you, but all I can say is I am so sorry. I think about M often and I really hope that things take a positive turn for you soon.
Post by sophiegrace on Apr 6, 2017 11:38:12 GMT -5
I'm so sorry. Have your doctors sent M's case over to other childrens' hospitals for a peer to peer review by any chance? Sometimes a pair of fresh eyes can pick up something not being seen. Or maybe they've dealt with a similar case and can offer advice?
I'm still crossing everything that the six month mark and bigger option for meds will be a turning point and the GJ won't be necessary.
Oh Sarah, this all breaks my heart too. But every time I see a pic of Monty, I smile. He is so loved by his parents and in the thoughts of so many internet strangers. Sending you strength during this time of stress.
Hearing that Monty is happy and healthy and gaining weight is a great update @sarahwithanh!! Always have you two in my prayers! FX the care conf goes well and everyone can get a plan in place!
ETA: forgot to add that all those pictures made me smile! He's adorable!
Post by sophiegrace on Apr 18, 2017 19:55:07 GMT -5
Add me to the I don't pray, but I still pray for Monty club. Since the beginning. I'm not sure who I'm speaking to, but I send my wishes out to whoever wants hear them.
I'm so happy there is a plan! Sending good thoughts and prayers for tomorrow.
I also hope the Dr has a really good nights sleep, has the perfect cup of coffee along with eggs done exactly how he wants them for breakfast, no red lights on the way to work tomorrow along with nobody cutting him off to cause unnecessary stress. Basically I want the Dr in tip top shape for this.
Oooh I like this!
I'd like to add that all the perfect songs come on the radio during his commute!
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