All-DOR Check-In 5/21

[lemonliz]

This is a special check-in this week. *warnings* I am tagging all DOR grads in. This is to get a head count and gather. 

Current DORbies: What's going on with everyone this week? Come and update us! 

And please, everyone send all their love to babyhopes this week. She needs us right now. 

All-DOR: And please do come chat about the future of this check-in!

One of the best things that ever happened to me on this site was ronniesgirl's creation of this DOR community. I'm not exaggerating when I say that I felt like such a loser when I couldn't seem to even make it to egg retrieval let alone get dozens of eggs like everyone around me. I wanted to quit IVF and I wanted to quit life and I wanted to quit the boards. There just isn't a good place for you when you are the IVF outlier and even your RE wants to give up on you. 

That THIS check-in exists and thrives gives me all the feels. My DOR girls mean everything to me. Without this place I wouldn't have learned about all the protocols and tweaks and tricks and how much experimentation matters. It is our Island of Misfit Ovaries! 




I'd really like the IF community to stick together but it's even more important to me to keep the DOR community together because I don't think another check-in/place like this exists on the internet. The only thing I've been ever able to find is the High FSH board but it's not really active. Basically any DOR advice out there is on individual blogs. 

So, let's hear from everyone. 

Tags coming in my next post.

[lemonliz]

This is a check in for anyone dealing with being labeled a poor responder, sometimes called diminished ovarian reserve but also called pof or poi. All are welcome here no matter where you are along your journey or what kind of treatment you're seeking.

4furrypaws
******
babyhopes
bonzo2012
dp21
heartpresidents
No Display
lemonliz
lillee
@underdog25
woodenshoes

Check in with us whenever you feel like it!
vballbaby
amandaleigh
sammae
pandora89
mushe


Grads:
gratefulandthankful -- IVF#9ish
fishchicks -- Round 2 IUI#1 with EPP and low stims
bootsorhearts — DE cycle
wannabmama - IVF#2
muscari - IVF#2
king26 - FET after 4 failed fresh IVFs
airbear916 — IVF#2
river — FET cycle
njnp528: surprise BFP after IVF#1
fishchicks: DHEA, TI#1 with EPP, low-stim + trigger
rslh10: FET cycle after IVF#1 w/PGS
@wineandcupcakes: FET#1 w/depot Lupron treatment after IVF#3
runcici: FET#2 after DE cycle
roeni: FET#1 after IVF#4 and PGS
Chrysanthemum: FET#1, 3 IVF banking cycles, CCS testing
Sha259: FET#4 w/last frostie from IVF#1
emilie: IUI#4 with EPP and stims
unringthebell: IUI#2 after supplements and 2 septum surgeries
those3words: IVF#4 (no BCP) MDLF, supplementing DHEA and CoQ10
ronniesgirl: surprise BFP on DHEA after IVF#5
RN1175: DE IVF
katelm: IVF#3 FET#1 after PGS
@tikoberry99: FET after IVF#1 w/PGS
pinotgrigio: surprise BFP after IVF#3
shananagins: FET, 2 IVF banking cycles, eSET PGS embryo
emmuffy: DW FET#1, IVF#2 w/HGH after DHEA and supplements
lilycakes78: IVF#2 MDLF
k1111k: IVF#3 MDLF, 2-day transfer of 4 embryos

[heartpresidents]

Hi! I agree, I was so relieved to find this check in and other women in my situation! I don't want to lose it.


Me this week...today was 15 days after trigger and test day. It was a BFN. So no more progesterone, and call at CD1.


I'd love the advice of the board on something...


We were originally going to give it 3 medicated clomid cycles (as long as I continue to respond) but...we have insurance through my husbands company and it covers IF treatments. My company's doesn't. His company is going through big organizational changes in the next month because they're merging with another company and we don't know if he'll make it through the layoffs.
What would you do??

[bonzo2012]

It's a big week for me here! I took my last BCP last night, start dex on Tuesday and stims on Thursday!

All of my meds arrived yesterday, and I spread them out on the dining room table. H had me take a picture, which I then sent to one of my BFs who is a doctor and knows what we're going through. Random question, I have a bottle of Nexium that they didn't say anything about at IVF class. Any idea what I'm supposed to be doing with it? Obviously I'll ask my nurse on Monday, but you all know so much too!

[bonzo2012]

Also, this DOR check in means the world to me. I feel like even in the wider infertility net (not on TCF, but elsewhere) there's a bit of an attitude of "oh, you're young, you have time!" But, I don't. I may be 29, but with an AMH of 0.84...well, you ladies know exactly what that means. And you've been an absolute wealth of information and support over the last few months as I've gone from that diagnosis to starting my first IVF.

Thank you for everything.

I go where you go.

[bonzo2012]

heartpresidents, do you know how soon the merger might mean layoffs? I feel like I would want to risk being in the middle of treatment when he gets potentially laid off. On the other hand, coverage is important.

I don't know that I have any advice, but I hope he can come through the merger untouched so that you can use his insurance without the stress of job loss!

[river]

***grad warning***


Thank you for tagging, lemonliz. In light of everything happening, I've been thinking of this board a lot. If not for the knowledge and support everyone here, I would have been fumbling around in the dark with my DOR diagnosis.

This community is the best. Lots of love to the current posters and grads.

[lillee]

heartpresidents I would try to get in the treatments now if you think he might lose his coverage. Do you know what type of severance he might get? I hope he makes it through the layoffs and you won't have to worry about it.

bonzo2012 Yay for getting started!

I started PIO yesterday for transfer on Thursday. I'll be off work for 2 weeks after that which I'm really looking forward to.

[lemonliz]

May 21, 2017 8:44:19 GMT -5 heartpresidents said:

Hi! I agree, I was so relieved to find this check in and other women in my situation! I don't want to lose it.


Me this week...today was 15 days after trigger and test day. It was a BFN. So no more progesterone, and call at CD1.


I'd love the advice of the board on something...


We were originally going to give it 3 medicated clomid cycles (as long as I continue to respond) but...we have insurance through my husbands company and it covers IF treatments. My company's doesn't. His company is going through big organizational changes in the next month because they're merging with another company and we don't know if he'll make it through the layoffs.
What would you do??

Go straight to IVF if you think you might lose coverage soon. If he gets laid off you can COBRA that coverage just in case you need it but cycling before then would probably be a big relief in terms of not having to worry about what would happen! 

[lemonliz]

May 21, 2017 8:48:09 GMT -5 bonzo2012 said:

It's a big week for me here! I took my last BCP last night, start dex on Tuesday and stims on Thursday!

All of my meds arrived yesterday, and I spread them out on the dining room table. H had me take a picture, which I then sent to one of my BFs who is a doctor and knows what we're going through. Random question, I have a bottle of Nexium that they didn't say anything about at IVF class. Any idea what I'm supposed to be doing with it? Obviously I'll ask my nurse on Monday, but you all know so much too!

Nexium, now that is a new one! I have never heard of that. When you talk to the nurse, fill us in! 

[bonzo2012]

May 21, 2017 9:27:23 GMT -5 lemonliz said:

May 21, 2017 8:48:09 GMT -5 bonzo2012 said:

It's a big week for me here! I took my last BCP last night, start dex on Tuesday and stims on Thursday!

All of my meds arrived yesterday, and I spread them out on the dining room table. H had me take a picture, which I then sent to one of my BFs who is a doctor and knows what we're going through. Random question, I have a bottle of Nexium that they didn't say anything about at IVF class. Any idea what I'm supposed to be doing with it? Obviously I'll ask my nurse on Monday, but you all know so much too!

Nexium, now that is a new one! I have never heard of that. When you talk to the nurse, fill us in! 

Absolutely!

[heartpresidents]

May 21, 2017 9:25:07 GMT -5 lemonliz said:

May 21, 2017 8:44:19 GMT -5 heartpresidents said:

Hi! I agree, I was so relieved to find this check in and other women in my situation! I don't want to lose it.


Me this week...today was 15 days after trigger and test day. It was a BFN. So no more progesterone, and call at CD1.


I'd love the advice of the board on something...


We were originally going to give it 3 medicated clomid cycles (as long as I continue to respond) but...we have insurance through my husbands company and it covers IF treatments. My company's doesn't. His company is going through big organizational changes in the next month because they're merging with another company and we don't know if he'll make it through the layoffs.
What would you do??

Go straight to IVF if you think you might lose coverage soon. If he gets laid off you can COBRA that coverage just in case you need it but cycling before then would probably be a big relief in terms of not having to worry about what would happen! 

I was leaning that direction but didn't want to be crazy. Thank you for the input! My RE already said she'll want to move me to IVF quicker than "normal" so I think she'll be fine with it.

[heartpresidents]

bonzo2012 I was actually being a little more optimistic with my use of "merger"...his company was acquired so he isn't on the good end of the deal. And layoffs will likely start mid-June.
But I'm excited for your big week and am excited to hear about your process!

And thanks lillee, we still have hope he'll make it through, but are realistic at the same time. He just started there 8 months ago so we fear his severance won't be great.

[emmuffy]

May 21, 2017 9:43:52 GMT -5 heartpresidents said:

May 21, 2017 9:25:07 GMT -5 lemonliz said:

Go straight to IVF if you think you might lose coverage soon. If he gets laid off you can COBRA that coverage just in case you need it but cycling before then would probably be a big relief in terms of not having to worry about what would happen! 

I was leaning that direction but didn't want to be crazy. Thank you for the input! My RE already said she'll want to move me to IVF quicker than "normal" so I think she'll be fine with it.

Grad warning


+1 straight to IVF to take advantage of coverage now

[bonzo2012]

heartpresidents, got it! I agree with others then, go straight to IVF while you have the coverage.

[emmuffy]

Grad warning

Hello all! I haven't been following the drama at all in terms of what is happening with this site. It feels like too much to stay on top of it all. That being said, I hope the DOR checkin continues to exist and has a home somewhere. This place helped me so much when I was struggling and I will always be so grateful for the support here. So much love and hugs to all of you.

AFM I'm back in the swing of things sort of - currently gearing up to do the ERA, which was recommended by my second opinion RE before he finalizes a plan leading up to a FET in sept of our last remaining euploid embryo. I'm in a pretty good place with everything right now. DW and I are away for the weekend in Niagara Falls. It was our 5th wedding anniversary yesterday. Im currently sending this update while she's playing craps at the casino lol (I took possession of her purse with the credit cards first).

[babyhopes]

Thanks for the check-in and love, lemonliz.

I agree with everyone about going straight to IVF, heartpresidents.

GL starting stims Thursday, bonzo2012.

I am rooting so hard for this transfer, lillee!

[babyhopes]

I POAS yesterday at 10dp5dt. BFN. DH and I are devastated.

We have decided to find a new RE. We have two in mind that we want to meet with. We are not and have not been happy with the place we are at now. They herd you through like cattle and you rarely see your RE. And the fact that DH couldn't be with me for the transfer sealed the deal.

We have two frozen BB blasts that we'll have to transfer to our new RE. I don't know how that works, but I'm sure whatever RE we choose can help us with that. Beta is tomorrow and I'll be requesting my records.

We have also decided to stim again. And we will be doing PGS testing. I know it's not a guarantee, but I think I'll feel a lot better knowing our embryos are chromosomally normal. I am learning towards asking my RE to do EPP.

Edited to add. The DOR check-in is where I feel the most comfortable. I do wish our community was a little more active though. I plan to stay or go wherever y'all decide.
       

[ProfessorChaos]

***stalker***

babyhopes , damn. I'm so, so sorry. I had to ship embryos, and it was NBD. You should ask at both the new clinic and old clinic how much they charge, because one might be cheaper. Both clinics will want you to fill out paperwork. For me, the new clinic ended up sending the tank to the old clinic, and the whole thing took less than a week. I was charged $350, but I think that's on the low end. When you request your records, have them sent to you but the clinic. That way you can check that they're correct (my first clinic omitted a whole IVF cycle) and have for the future.

Sending you hugs and wine.

ETA: fixed typos.

[bonzo2012]

babyhopes, I'm so sorry. So many hugs!

[babyhopes]

May 21, 2017 10:49:21 GMT -5 ProfessorChaos said:

***stalker***

babyhopes , damn. I'm so, so sorry. I had to ship embryos, and it was NBD. You should all at both the new clinic and old clinic how much they charge, because over might be cheaper. Both clinics will want you to fill out paperwork. For me, the new clinic ended up sending the tank too the old clinic, and the whole thing took less than a week. I was charged $350, but I think that's on the low end. When you request your records, have them sent to you but the clinic. That way you can check that they're correct (my first clinic omitted a whole IVF cycle) and have for the future.

Sending you hugs and wine.

Thank you!

I definitely plan on having my records sent to me first. I worry too that they may leave information out or have something wrong. 

I read online that we can transport them ourselves. I guess I'll do whatever is the easiest. Thank you for the info. Hope things are going well for you!  

 

[gratefulandthankful]

babyhopes, I'm so damn sorry. I was hoping this was your cycle. You have been so strong through all your FET preps. I'm sorry about your BFN, but I'm happy you are not giving up. We will be here to cheer you on (((HUGS)))

[heartpresidents]

babyhopes I'm so sorry. But I'm glad you're moving to a new RE. People aren't always willing or confident enough to advocate for themselves when it comes to things like that. You and your husband are awesome for doing what you know is right for your family and your health.

[heartpresidents]

Thank you for the support everyone! Ok, IVF it is, and hopefully we can get through the process before having to switch to my insurance. So do I still stop progesterone and get ready for CD1? Is there any benefit to delaying CD1 until I can talk to me RE tomorrow?

[bootsorhearts]

***Grad warning***

Hugs babyhopes, and anyone else who needs them this week.

The DOR community has been so supportive and accepting even though at times I've been a f'ing drama queen, y'all put up with me and kept supporting me. I don't know where I'd be without you guys. I doubt I would have been brave enough to go down this current path.

I am not up to date on the current drama, I wish we could all just stay here but I don't know all the circumstances. I stalk you guys regularly and love-tit and am cheering you on even if I don't post.

Someone just keep me in the loop with where you go if you go!

[k1111k]

*Grad warning*

Thanks for the tag, lemon ❤️ Hi Ladies! Thinking of you all and I'm sorry regarding all this recent TCF drama...I haven't been on a lot since January. Us DOR ladies need to stick together! Please keep me posted if you all find a new "home" and I am definitely open to a DOR FB group as well.

[mushe]

Thank you for the check in and keeping us all on track, lemonliz! Apologies to you all that I just disappeared. I was working ridiculous hours, then we just went on a 2 week vacation, and today I'm off to a conference. I got home at 1am and had to leave at 9am for my next trip. Ugh!

I've got nothing going on TTC-wise; planning to get an IUD still, so I can just not worry about it. Six losses and I'm done with trying.

I do want to welcome you all to GBCN! I've posted there for years, and came here just for the DOR group.

[lemonliz]

babyhopes, I absolutely HATE this. I am devastated for you and I wish I could float a Yeti full of booze down to you right meow. I hope you get lots of piggy snuggles this weekend (or at least just not piggy tantrums!).

Did I ever tell you that I picked our one frozen 2PN embryo up from clinic #1 and drove it to clinic #2 on the other side of town? It was free. I just had to sign for it at clinic #1 and deliver to clinic #2 and pay them a thawing fee of $750. The embryologist took the embryo and gave me back the tank. I returned the tank to clinic #1. It was easy.

[Deleted]

Hi everyone,

My RE hasn't formally finished diagnosing me, but DOR is being thrown around for sure.

I'm 33 with an AMH 0.07 and my last AFC 2.
I told the RE it was wonderful to see an even number. He tried really hard not to laugh at my awkward optimism.

My Estrogen levels are out of control too. On CD 3 it was 745, then jumped to 1105 on CD 4. I also have a 3.2 cm cyst for funsies.

I gave myself an Ovidrel shot on Friday night and have felt like crap all weekend.

[gratefulandthankful]

May 21, 2017 15:56:32 GMT -5 unringthebell said:

Um. I just read the end if one of the pinned threads. Does anyone talk to wineandcupcakes off board? I see she got into it with one of the parenting posters and she's deactivated now. I hope she's ok

********TW***********

I saw that too. I don't talk to her offline, but she's one tough cookie. She's probably just over the b.s. & really busy with the twins. That's my guess.