Post by mustardseed2007 on Jan 23, 2015 16:43:00 GMT -5
Hi ladies, looking to see if anyone has gone through botox to treat torticollis or knows anything about using botox to treat torticollis in infants.
My DD is 10 months old and has been in physical therapy for torticollis (left tilt) since she was 4 months old (no flat head or other issues). She has improved, but has pretty much plateaued at this point in terms of improvements with a still persistent tilt. Also, the tilt is more pronounced when she is ill or hitting a milestone. Her ROM is also not good when looking left but is also a bit restricted when looking right.
We saw a PM&R doctor who suggested botox. DD would be 11 months based on the date the doctor suggested. She said it can release the tension in her neck for about 3 months, during which time we continue the PT, and allow her muscles to strengthen and that she's never had to inject anyone twice - the torticollis has always resolved. I was actually pretty excited to hear that.
We talked to her PT about botox and they felt like it was aggressive at this stage to do it. Apparently our therapist has never had a client who used it and the youngest person in their practice to receive it was 1 year, and some were as old as 2. I feel like they are discouraging us from getting it done.
We do the therapies regularly, but aren't able to do them as much as the PT suggests. Also she's in daycare. We have showed them how to do her stretches and they say they do - but they have 5 kids in there so I don't know if it's truly happening as much as we'd like.
I'm leaning towards doing it, b/c it might give us the chance we need to fix things for her once and for all if we really get together for 3 months of intense stretching after the injection. DH is more hesitant. And the PT's seem hesitant.
Has anyone ever had this done or know someone who has had it? If so, at what age was the botox injected and how did it turn out?