Post by somethingcleverer on Jan 28, 2016 17:00:57 GMT -5
So I haven't been posting a lot about me because I feel like it's always so depressing but I thought I would update since I just went to the oncologist. The cancer is bigger than they initially thought, but it can't be felt on exam which means that it's more of a free floating cancer which is worse than a lump of cancer. I had an mri yesterday and it showed a spot on my liver and they don't know if it's cancer or a cyst. My liver function tests are normal and I don't have any pain in the area so let's pray it's a cyst. Otherwise they want to get the Mri of my head and liver to make sure there is nothing else going on there. I had headaches earlier in the year that we attributed to allergies but We don't want to take any chances. Since the cancer is more aggressive we are speeding up all the tests and hopefully starting chemo on 2/8. Guys, I'm so scared. Please keep all the prayers coming. I just need to get these results ASAP so I know what I'm dealing with and I can get started fighting this.
Post by summergirl1211 on Jan 28, 2016 17:05:19 GMT -5
Oh hon. I'm so so sorry you've gotten such scary news since your last update. I am crossing everything possible that the rest of your tests come back normal and it's just a pesky cyst on your liver. I'm glad they're moving up the treatment too so that you can start fighting this damn thing.
I so wish I could be there and give you a big huge hug and just let you cry if you wanted to. We are here for you and hope you know you can share here any time, regardless of how sad, scary or whatever. We're here for good and bad, right? That's what family is for. We love you somethingcleverer. Sending you all the love and hugs I can.
Post by xanthepants on Jan 28, 2016 17:06:38 GMT -5
Oh sweetie - you get all the prayers. I'm sorry for the not so good news you got today. Please hang in there. You can do this and try and think positive, you've got a lot to fight for.
Oh girl. I am so sorry that you got this news. This is just not fair. Please know that we are always here for you and we are fighting with you. So many hugs, prayers, good thoughts and so much love. So so so much love.
I didn't know you were dealing with this, and I'm sorry for that. I am scared for you, but I'm glad that you are getting the medical attention you need, as soon as you need it. Chemo is scary. Cancer sucks. I'm praying that the liver thing is a cyst.
Please keep us updated, and I will be sending all my god juju your way. I'm so very sorry, and please remember that you always have a family here that you can lean on.
Post by junkytrunk on Jan 28, 2016 17:35:58 GMT -5
Oh i am so sorry this is the news you got. I know this is such a scary time and I wish we could all be there physically for you, but we are all here rooting for you and praying for you. Hugs!
Update on meJan 28, 2016 17:42:15 GMT -5via mobile
Post by britbratjf on Jan 28, 2016 17:42:15 GMT -5
I am so so sorry you got this news. Praying so hard for you. I know I'm not super close (Indy) but honestly,100% if you need help please let me know & I will be there.
I'm praying for you all the way and you have been on my mind since I found out about all this. I hope you get all the answers you need from you test. Knowledge is power and I hope your treatment helps you feel empowered against all of this. We're all here for you.
ETA: I would just like to say I think the fact that you have still been actively supporting and encouraging others on this board speaks volumes about what an awesome person you are.
I think about and pray for you everyday. Please share as much or as little as you need to--it is not a burden to any of us, especially if it helps you cope with the scary and unknown. Sending you all of my love and hope wrapped in a great, big hug with a box of wine on the side.
Im so sorry you did not get good news today. Please know you can always come here to talk and vent or to just get away for awhile. I am praying for you everyday and will continue to do so. You continue to be strong!!
I'm sorry it is bigger than initially thought. But you are so strong, I have no doubt you will kick cancer's ass so hard! We are here for you, and we will be cheering you on the whole way.
Post by somethingcleverer on Jan 28, 2016 18:44:04 GMT -5
Should I update the fb group? I feel weird posting about it but then I have people I feel close to there that have no idea what's going on. I've been going back and forth on this.
Should I update the fb group? I feel weird posting about it but then I have people I feel close to there that have no idea what's going on. I've been going back and forth on this.
You do what you feel comfortable with. There are people I'm close to that I still have not told about the miscarriage, bc it just wasn't the right time, etc. you'll know when you're ready. There is no rush.
Post by origamimommy on Jan 28, 2016 19:29:52 GMT -5
I'm so sorry. Please don't feel badly about venting to us. We love you and you have been on our hearts and minds since this happened. We are here for you. You have my thoughts and prayers. And we'll all be here through it all!
Should I update the fb group? I feel weird posting about it but then I have people I feel close to there that have no idea what's going on. I've been going back and forth on this.
I think this is totally and completely your call. Just know that they will be another source of support, totally, but you need to feel okay sharing. We support your decision regardless.
Post by cookiesandwine on Jan 28, 2016 19:43:40 GMT -5
So many prayers for you and for the additional MRIs to show nothing. You're such a strong person and your spirit and attitude are just phenomenal. You are inspiring. Say the word and I can be there in 3 hours if you need anything at all!
Update on meJan 28, 2016 19:49:53 GMT -5via mobile
Post by lainikins on Jan 28, 2016 19:49:53 GMT -5
Sorry it is bigger than first thought. I hope the mri shows that it is just a cyst. You are such an amazing person and so supportive. We are all here for you.
oh I was so hoping this was going to be a super positive update. It must be nice to have a chemo start date. I really hope the rest of your tests come back in the best possible way
we are here for you, never feel bad about posting!
somethingcleverer, huge huge hugs to you. I'm so sorry the news wasn't better. It sounds like your doctor's are being very aggressive, which is such a good thing. I hope the rest of your tests come back with good news. You can beat this!
Huge hugs somethingcleverer!! I am praying so hard that it's just a cyst on your liver and the rest of your MRIs are clear! When do you go in for those? Never feel bad about posting updates we are here for you through it all! You are an AMAZING Laide and I know that you got this!
Update on meJan 28, 2016 21:32:45 GMT -5via mobile
Post by mrsdonati on Jan 28, 2016 21:32:45 GMT -5
I'm so sorry that you didn't get good news today. Thinking of you often, and sending lots of prayers and warm wishes that the mri comes back clear. Hang in there, you got this!
Should I update the fb group? I feel weird posting about it but then I have people I feel close to there that have no idea what's going on. I've been going back and forth on this.
I have no doubt you would have a huge amount of love shown from that side of the group too. You do what you are ready for. It really depends how public you want to be with what's going on. If there are a few key people you want to share with you could always just message them.
Update on meJan 28, 2016 22:40:16 GMT -5via mobile
Post by aylafsu1881 on Jan 28, 2016 22:40:16 GMT -5
Lots of hugs. That is not the kind of news anyone wants to hear. It sounds like your doctors have a plan which is great. You are strong. You are determined. You will get through this and beat it. We are all here for you.
This sucks. Really sucks. And I'm so sorry that you're having to deal with it at all. That said, I'm glad to see an update because you've been on my mind a lot. I'm glad you can confide in us some and we can support you. That's what we're here for, through thick and thin!
With the additional brain MRI and scans, have that talked about just doing a whole body scan now that they're questioning the liver too? I feel like you should ask/ push for that, just to be sure. I pray that is just a cyst since function seems to be normal.
As for the FB group, do what you are comfortable with. Totally different situation, but with everything that happened last year I was hesitant to share there at first as well. But I knew some people there that I wanted to share with and knew it would be easier as a group rather than keeping track of multiple individuals. So I did share there, but always felt the need to update and share here more. In the end it's up to you of course, but know there are likely some in the FB group who do care about you, and having added prayers is never a bad thing.
Also, you may consider a caring bridge site where you can journal/share more details and update in one location instead of multiple. It really helped me last spring when things got busy. I didn't have the energy to keep up with 4 different email chains, here, and FB with all updates! Just an idea. You can keep it private if you'd want to.
I am so sorry you didn't get better news at your recent appointment. I really hope the spot on your liver is just a cyst and that the rest of your scans come up clean. Even though it looks like it might be more aggressive than originally thought, know you can still fight and beat this thing. And we will all be here behind you. Don't feel like you are being too depressing, etc. We are here for you in all the good and the bad; that is what family is for. Seriously, please let us know if there is anything we can do for you. Sending you all my hugs and prayers
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