My doctor just called me and our NT results came back for an elevated risk of down syndrome. 1 in 97 chance. We have a pgs tested embryo so I don't understand. Next step is Harmony test. I guess now my insurance will cover it. It makes me so nervous something is wrong with her. I just needed to vent because I'm a ball of anxiety right now.
*UPDATE* Nurse called me, results finally were back. The test came back completely normal. Im so thankful. Thank you so much for your T&Ps
Oh yoshijo - I'm so sorry. My Dr offered us the NT scan vs the NIPT/full fetal cell free DNA test (aka harmony / panorama / whatever other name the company uses) and my DH said he'd rather do the more accurate blood test than the NT scan bc of things like false positives. I really, really, hope yours is a false positive. I know that next two ish weeks of waiting for the result will not be fun- I've been in that waiting game last time after bad news on the u/s, so I have all my fingers crossed for you and will be keeping y'all in my thoughts.
yoshijo28, Hugs to you and sorry for the added worry. Others had really good points and I hope the Harmony testing will ease your mind. You should be able to do it now, right? You are definitely far enough along.
Post by cravingchocolate05 on Jan 26, 2017 5:57:09 GMT -5
yoshijo28 So sorry this is happening just when you were startng to feel more assured. Like others have said, I've heard there are false positives from this test. Best, best wishes for your NIPT test and I hope the results come back quickly.
Post by wanderingstar on Jan 26, 2017 12:38:49 GMT -5
I'm so sorry you are having to worry about this. I have no experience with it but just wanted to offer my support. Please keep us updated! Creepy internet hugs coming at ya.
@yoshilo28, I was thinking about this last night. Have you thought about contacting your RE for their thoughts on this?
Sending more (((hugs))) your way.
I considered it but didn't really know what to say. I really would like someone to explain this though. The OB told me DS can form randomly after implantation or they could biopsy a cell that just didn't have it but others did. I think if God forbid we get bad results from the NIPT I will call them. I need to ask my OB for more info about the blood test.
Even if there were markers in the blood test , the NT scan and my age are all factors that should have reduced the risk. Idk I guess I'm not educated enough on this to understand
Oh yoshijo28, I'm so sorry your results came back with an elevated risk. I hate that you have to worry about this. I have to come back to read the rest of the thread later on but wanted to send you hugs in the meanwhile!
Blood draw done. Im being sensitive but I was pissed the whole 10 min I was there.
1st the nurse tells me the test will cost $199. I said I thought it was covered bc of the NT results. She checks and magically it's covered. But the Harmony test is out of network so the test is called Informaseq. Ok, same thing
She finishes and says I'm done. Then she asked oh, you're not IVF are you? I said yes. She asked if they were my own eggs and my age. It just rubbed me the wrong way..idk why. Just makes me feel like no one looked at my chart. The dr who called me with results didn't even know we had done pgs testing.
Then she opens the door and yells down the hall to someone else that the previous couple would like a D&C scheduled asap like tomorrow. Not cool, I saw a couple walking out while I was waiting and I know it was them.
Post by cravingchocolate05 on Jan 26, 2017 19:01:04 GMT -5
OMG yoshijo28! That was so insensitive of the doctor's office in so many ways. I've had some complaints about my Dr office, but nothing even close to that!
Ugh. I'm so sorry you had such a shitty experience with he blood draw. Some people just lack sense and professionalism. 😡 Sending hugs and hoping the results come back sooner rather than later. It's a sucky wait period, but I'm with ketchup that I am inclined toward thinking it everything else points to okay, so my fingers and toes are crossed the initial bw was false. I hope you can take some time and NOT think about it. I know it's basically impossible but hopefully you can. Hugs.
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