Another Update from me...

[trixi282]

I do feel like a PW or maybe even an AW sometimes... but you have all been so supportive, so bear with me and another one of my lengthy updates 

Today we got some not so good news again... Our CPAM apparently doesn't like to follow the norm and continues to grow instead of reaching that supposed plateau we've heard about. So I'm headed back to the OR tomorrow for yet another shunt procedure (5th procedure in OR, 6th shunt to be placed) for our little "Nugget". The size of the cyst this morning had grown - not huge - but big enough that she doesn't want to wait until Thursday to look at it and potentially allow it to get too big again.

We also got more information from the Fetal MRI last week and the results are not as good as we were hoping. Lots of info condensed to say that the left lung is looking good and as though it's developing fairly well. The right lung however is extremely small. At this stage they look at lung volume combined and we're "moderately low" right now. The only thing we have to compare lung volume to was 25 weeks gestation (I was 1 day shy of 29wks) and we were below the normal range for overall volume at 25 weeks, so to me that's pretty low. But we still have some time, and it's not the smallest my MFM has seen, so she's still thinking this can turn out okay. But that Nugget may have less lung tissue on the right than we were hoping when all is said and done.

We talked a lot about what that means for after baby is born and we're obviously hoping for the best outcome. MFM talked about some of the things they could do after baby is born or might do, just so we're prepared ahead of time. But of course it's all just a waiting game as this whole thing has been, sprinkled with unknowns and best guesses until baby is actually here and we know the real situation.

Doc did say though that our real goal now is to get as close to 40 weeks as we can so that baby has as much time as possible for the lungs to develop. "Luckily" J was a full week late, so my MFM is happy to hear that in hopes that we are likely get nice and close to 40 weeks then.

10 more weeks... just 10 more weeks...

[veggiemo]

Oh man. I really have a hard time thinking of what exactly to say, because I know nothing can make this easier or better. But you just seem like you really are keeping a good head on your shoulders through all this and staying strong which is so commendable. I'm hoping things turn out the best they possibly can! Good luck tomorrow with the 6th shunt and thank you so much for the frequent updates. Please keep them coming! Here's to another 10 weeks of lung development!

[alayne926]

I am so sorry that you got more discouraging news, but it sounds like your MFM keeps you well informed and is supportive. Hoping the procedure goes well and that you get your plateau.

[sapphyre0702]

Best of luck tomorrow, and many many good thoughts for you over the coming weeks!

[tiffbot]

Aw I'm so sorry for another stressful update for you guys. Good luck at your shunt procedure again, I still think it's amazing all the things they can do for your little baby already and think about likely how far you have come because of it. I hope for you to make it another 10 weeks and get those lungs nice and big!

[tjanca22]

Continued thoughts for you and Nugget. Prayers that the next 10 weeks will bring good news. Keep us posted on how the next procedure goes.

[Bluedaisy]

I'm sorry you're going through this, it must be so much to process. I'm glad your team is keeping you informed. Fingers crossed that everything goes as smoothly as possible!

[txngrl31]

Thank you for keeping us updated, and please let us know how tomorrow goes. Prayers headed your way for tomorrow, and for another 10 weeks of growth.

[santoki77]

Good luck at tomorrow's procedure. Don't feel like you're an AW/SS, imho that's why we're here. Being told all the risks and procedures are scary but trust your MFMs, they seem to be keeping a good eye on things and keeping you informed. T&Ps being sent your way and ((HUGS))

[bruunk]

Sending good thoughts to you and Nugget! 10 more weeks - you can do this!!

[tulips114]

Good luck tomorrow! Keeping you in my thoughts!

[ThePalindromicOne]

Thanks for the update, i'm sorry to hear that it's not the best of situations presently. I hope nugget gets to keep cooking and growing! Good luck with the procedure!

[wormgerm]

Best of luck for the procedure and development over the next 10 weeks. C'mon Nugget, lots of ladies on the internet are rooting for ya!

[sordidvolition]

Sending T&P for 10 more weeks! Sorry you got not so great news but your MFM sounds great! Glad there will be a plan for when Nugget gets here. And you're nowhere near an AW or SS!

[mrsdee1982]

So sorry for a disappointing appointment. I hope your procedure goes well and little Nug keeps on growing and developing.

Sometimes I don't like to think of things in "week" chunks, because it seems like too long. "10 more weeks" is too long for me to think about. But I can totally get through "10 more Mondays". Maybe something like that will help you get through the wait.

[mrsmonogrammed]

Sorry for the sad news, but hopefully these next 10 weeks fly by with minimal issues!

[mrskblack11]

Sending more positive thoughts and prayers for you and your LO. I hope the procedure goes well tomorrow and helps reduce the size. Sending ((hugs)).

[wegrowsheep]

I'm glad you post the updates, not AWish at all! Prayers for 10 more weeks of development and strong lungs for screaming

[laurenlou83]

I'm so sorry for the setback, but just stay strong! You are doing amazing so far. Thoughts are with you for a healthy 10 weeks!

[tatersalad]

I'm sorry you are still dealing with hard news to swallow. Hoping tomorrow's procedure goes well and keeping T&Ps with you and Nugget.

[leenziepops]

You are not AW/PW. Please share with us whatever you please. Sorry to hear about Nugget's lungs. Sending you both lots of positive juju. Keep baking little Nugget.

[missjenniebean]

Prayers your way! Stay strong!

[fuccimama]

Good luck with the procedure! Praying for ten successful weeks for LO!

[stinybean]

I'm sorry that you are having to continue to deal with this. I will keep you in my t&ps that this shunt works and that your nugget stays nice and healthy and safe. ((Hugs))

[billyhorrible]

Your MFM sounds really proactive and positive. It sounds like you're in really good hands. I won't wish you luck on tomorrow's procedure- you're a pro at those. But I do hope that things start turning around and you don't have to have any more procedures. And I do wish you luck in keeping that baby cooking as long as possible for the best possible outcome.

[Deleted]

I don't know if this helps at all but i have a friend that has less lung tissue on one lung side and she is totally healthy. She is just not able to run a marathon so she does have limitations in regard to never being a pro athlete but other then that she is great. But maybe it can mean more risk for an infant.

In regard to the shunt procedure, I'm so sorry you have to go through this again but I'm glad your doctor is being so detailed with you and the baby's care. It sounds like you are in the best of hands.

[Widget123]

Hang in there. I will continue to keep you and your baby in my T&P.

[noeliav]

Sending you and Nugget lots of good thoughts, mama.

[beersandweirs]

I am sorry you got some more not so good news, but at least you are in the final stretch. Thinking of you and baby!

[Ana0927]

Sending you and nugget lots of T&P! Hope everything went well.