First! (kind of intro)

[BostonKisses]

Imma gonna go ahead and break in this shiny new board. 

Old SN on TB was BostonKisses.  My kiddo is 4, has cystic fibrosis, and we're doing evals for a possible ASD.  There's nothing quite like filling out the ASQs and really seeing where the delays are.  :/

[fickleflamingo]

Hi!! I'll be second. I like to change my name way too often and have been tons of names on TB. Mainly kate930 and babylimas. I have a typical 4 year old and an almost 1 year old little boy with Down syndrome.

BK - I think you were right behind me on the tri and age boards way back when.

[BostonKisses]

I remember you from the babylimas SN! Im sure I was with the group right behind you on the age boards at least. Tri board were hairy because I should've been 2 groups behind, but moved up early after the kid had to come early.

[numbbears]

Hey Boston and Limas! I'm veggieroll on SN.

Intro-2 year old recently dx ASD w/ GDD

[triplea598]

I hope it's ok that I post here. I only posted once on the SN board...
My DS is 16 months old. He has bilateral congenital cataracts, recently dx with amblyopia in his left eye, minor motor skill delays, recently received dx of a mild vestibular disorder, and he's getting a speech eval on the 27th. He also has an appointment with a pediatric audiologist on the 21st to rule out any hearing impairments.
I'm in the process of trying to get him an appointment with a developmental pediatrician.

[fickleflamingo]

Jan 13, 2015 21:16:00 GMT -5 BostonKisses said:

I remember you from the babylimas SN! Im sure I was with the group right behind you on the age boards at least. Tri board were hairy because I should've been 2 groups behind, but moved up early after the kid had to come early.

I was on the board with Yankee when I was kate930. Part of that whole mess. we went off board right before the kids turned a year.

[BostonKisses]

Jan 14, 2015 7:34:25 GMT -5 fickleflamingo said:

Jan 13, 2015 21:16:00 GMT -5 BostonKisses said:

I remember you from the babylimas SN! Im sure I was with the group right behind you on the age boards at least. Tri board were hairy because I should've been 2 groups behind, but moved up early after the kid had to come early.

I was on the board with Yankee when I was kate930. Part of that whole mess. we went off board right before the kids turned a year.

Ahhhh, yes I'm starting to remember your previous SN now too!  I lurked pretty heavily and posted sometimes during the Yankee debacle.  It doesn't seem like it's been a few years since all of that went down, and I swear that's still among the biggest catfishes in bump history.

[jfresh]

Hello! I have been lurking a bit on the SN board on TB and meaning to intro but haven't gotten around to it. Same SN as TB. My son has delays related to persistent pulmonary hypertension when he was a newborn. Evals are ongoing but we've been with EI since he was a few months old and he'll be starting developmental preschool soon.

[rach]

Hi! I had not made my way over the forum on TB. My SN there was charlottevol.

My 8 year old has major food & environmental allergies. Her primary issue is gluten intolerance; she is also allergic to rice and black pepper (!!!). We're still in the introduction phase for testing some of the other things that showed up as allergies on her most recent test.

My 6 year old has ADHD and is on the Autism Spectrum. The ASD diagnosis is relatively new and we're still working out what that means for her schooling.

[BostonKisses]

Jan 13, 2015 22:56:17 GMT -5 numbbears said:

Hey Boston and Limas! I'm veggieroll on SN.

Intro-2 year old recently dx ASD w/ GDD

Hey hey hey!  Glad you made the jump!

[BostonKisses]

Jan 14, 2015 0:46:31 GMT -5 triplea598 said:

I hope it's ok that I post here. I only posted once on the SN board...
My DS is 16 months old. He has bilateral congenital cataracts, recently dx with amblyopia in his left eye, minor motor skill delays, recently received dx of a mild vestibular disorder, and he's getting a speech eval on the 27th. He also has an appointment with a pediatric audiologist on the 21st to rule out any hearing impairments.
I'm in the process of trying to get him an appointment with a developmental pediatrician.

It's absolutely ok!  I'm hoping that we'll continue the supportive, informative environment that we had on TB.

GL with the speech eval and the audiologist appointment!  We're going to be doing the audiology thing too because Judith didn't cooperate as well as I had hoped for her hearing test at her well visit, so they want to double check and make sure that everything's ok and it was more behavioral.  She was on a lot of doses of vancomycin, clindamycin, and gentamycin (I have no clue if I spelled those right) throughout her NICU stay, so the PCP's concerned that there might be residual damage that didn't show up right away.

[BostonKisses]

Jan 14, 2015 8:32:15 GMT -5 jfresh said:

Hello! I have been lurking a bit on the SN board on TB and meaning to intro but haven't gotten around to it. Same SN as TB. My son has delays related to persistent pulmonary hypertension when he was a newborn. Evals are ongoing but we've been with EI since he was a few months old and he'll be starting developmental preschool soon.

I hope you'll jump in more over here. 

[BostonKisses]

Jan 14, 2015 8:41:22 GMT -5 rach said:

Hi! I had not made my way over the forum on TB. My SN there was charlottevol.

My 8 year old has major food & environmental allergies. Her primary issue is gluten intolerance; she is also allergic to rice and black pepper (!!!). We're still in the introduction phase for testing some of the other things that showed up as allergies on her most recent test.

My 6 year old has ADHD and is on the Autism Spectrum. The ASD diagnosis is relatively new and we're still working out what that means for her schooling.

Welcome!

[mack]

Hi! I was an active poster on parenting, and not much on SN.

My 6 yo daughter is undergoing testing and evals to get a definitive diagnosis. She has hypotonia, mild spasticity, toe walks, and has knock knees. She also has social/emotional delays. We have an MRI next month and are awaiting scheduling with the developmental pedi.

[katybriggs]

shoutout fickleflamingo (do tags like that even work in this new place?!)

I posted on SN on a somewhat regular basis also. I've got an almost 1 year old with DS myself. He is the light of my life and he makes me a better human being.

We have a consult with an allergist today because he's been congested for most of the last year. I understand this could be normal with DS, but we need to rule out an allergy to our cat.

Welcome to everyone though, the old regulars, lurkers, new folks. Being a SN momma is really something else.

[dixienormous]

I've been a few people on the other site. Currently I've been Dixienormous330. Didn't want to change it up too much.

My 4 (as of today) yr old daughter, aka PF, had a prenatal stroke that did some significant damage to her brain. She's a globally delayed, non-verbal, gtube fed, learning how to walk (and wanting to!!!!) ball of awesomeness. She's also about to become a big sister at the end of April.

[leroybrown]

Oh hello! I'm previously LoisLayn. I've got a 4 year old that's being evaluated for ADHD/SPD and a 5 month old with developmental delays. And a fat 2 year old in between who eats her weight in bananas daily

[fickleflamingo]

Hiiiiii katybriggs!

[beaf12]

Hi! I' was an occasional poster on SN. My 4 yo, DS1 has verbal and motor apraxia. He also has some social delays. Plus, he's 4 which varies between awesome and hellacious. I'm annoying in my crusading for kids w/ speech delays to have access to alternative forms of communication. I have a NT 6 yr old and 2 yr old.

[shaynap123]

Hi all! I was a member of the Bump since 2008, and mostly lurk. The boards I am most active on are Special Needs and at one time the Preemie board. I'm currently a broker studying for a licensing exam so I may not be an active poster. I did want to introduce myself.

My bump name is Shayna0182. I have a ds who is in a self contained special education Kindegarten. He is 5 and will be 6 in June. He has ASD/SPD and ADHD. Currently, he takes Focalin XR, and Clonadine. Those seem to help with the over stimulated behavior and some of his tics. He receives 1 hour a week private OT, and speech and behavioral supports through the school.

He is our only living child, and we've had two other daughters who've passed away due to stillbirth. I can't physically have anymore children.

Anyway, hello and glad to see everyone from the Bump!

[fivechickens]

I used to be the bump (TTC35) though I can't remember my SN but it had chicken in it.

Anyway, I have triplet girls who will be 4 in April. My 'youngest' has a mild form of cerebal palsy. It affects her leg the most so she has leg braces and uses a walker. It also affects her arms but not as bad. We are working with therapy through preschool and a private PT. We are hoping that she will one day be able to get around with out any help. She nicknamed her walker Sparky.

Her sisters are very good with her and include her by playing in a way she can parttake too.

[BostonKisses]

Jan 14, 2015 9:40:56 GMT -5 mack said:

Hi! I was an active poster on parenting, and not much on SN.

My 6 yo daughter is undergoing testing and evals to get a definitive diagnosis. She has hypotonia, mild spasticity, toe walks, and has knock knees. She also has social/emotional delays. We have an MRI next month and are awaiting scheduling with the developmental pedi.

Oh geeze, I didn't realize you guys were still waiting for a definitive dx.  I thought you already had one.  Hopefully you can get some answers soon.

[BostonKisses]

Jan 14, 2015 13:17:16 GMT -5 fivechickens said:

I used to be the bump (TTC35) though I can't remember my SN but it had chicken in it.

Anyway, I have triplet girls who will be 4 in April. My 'youngest' has a mild form of cerebal palsy. It affects her leg the most so she has leg braces and uses a walker. It also affects her arms but not as bad. We are working with therapy through preschool and a private PT. We are hoping that she will one day be able to get around with out any help. She nicknamed her walker Sparky.

Her sisters are very good with her and include her by playing in a way she can parttake too.

Were you on the preemie board?  I think I might remember you and your girls, particularly because there weren't many triplet moms, mostly twin and singleton moms.

[megara4]

Hello, none of you probably know me as I was a lurker and mostly active on my BMB.

I have a 12 year old son with ADHD who is also gifted, it makes for an interesting combination. I have a 10 year old daughter with ASD. She also has been diagnosed with SPD and GAD. They have flirted with ODD and ADHD, but I really think all of it just falls under ASD at this point. I have a 7 year old daughter who is emotionally sensitive and we deal with a lot of crying over things that are no big deal. I also have a 7 month old daughter that brought me to TB and my BMB in the first place.

[namastebiotches]

Hi, I'd like to intro since I did post a very tiny amount on the special needs board on TB & was interested in keeping up with it.
I have an almost 3.5yo son. He's currently in our school district preschool M-Th. We have an IEP there where he gets extra assistance from the early intervention specialist/co-teacher. He also sees the speech therapist there on a regular basis during school hours.
He has a speech delay & probably some sort of speech disorder/impediment. They haven't given us any concrete answers because he's relatively new & he doesn't cooperate all the time so I've been told it's a little more challenging with him to figure out exactly what's up. That & also he's pretty young & who we've come across have said they don't like to formally diagnose until 4+ after they can actually hear more of him. He makes it difficult by being a little uncooperative at times. He's kind of all over the place so it's hard if you first meet him to grasp what the deal is.
If I could describe it, his speech, as well as, some of his behavior make it seem like he's much younger. In the 2-2.5 year old kind of age.
We do have plans to find a developmental pediatrician to get their opinion sometime this spring but everyone who has evaluated him thus far tells us he is just lacking in the speech department. 

[fivechickens]

Jan 14, 2015 13:48:46 GMT -5 BostonKisses said:

Jan 14, 2015 13:17:16 GMT -5 fivechickens said:

I used to be the bump (TTC35) though I can't remember my SN but it had chicken in it.

Anyway, I have triplet girls who will be 4 in April. My 'youngest' has a mild form of cerebal palsy. It affects her leg the most so she has leg braces and uses a walker. It also affects her arms but not as bad. We are working with therapy through preschool and a private PT. We are hoping that she will one day be able to get around with out any help. She nicknamed her walker Sparky.

Her sisters are very good with her and include her by playing in a way she can parttake too.

Were you on the preemie board?  I think I might remember you and your girls, particularly because there weren't many triplet moms, mostly twin and singleton moms.

Yes! That was me. :-)

[BostonKisses]

Jan 14, 2015 14:31:54 GMT -5 fivechickens said:

Jan 14, 2015 13:48:46 GMT -5 BostonKisses said:

Were you on the preemie board?  I think I might remember you and your girls, particularly because there weren't many triplet moms, mostly twin and singleton moms.

Yes! That was me. :-)

Oh good, my memory is still pretty sharp lol!

I have to say, though, how on earth are your girls almost 4?!  I'm still kind of in denial that my own kid's already 4.  Craziness.

[fivechickens]

I know! I was looking at picture when they were squishy little babies and thinking how it seemed like yesterday.

Life is 'easier'. Every age comes with challenges but it is nice that they are much more self sufficent now.

[BostonKisses]

It's definitely a new reality, that's for sure. I feel lucky and grateful that we've hit the liking to help stage, even though if something is out of routine she's starting to have negative reactions. But from the CF side, she's starting to show early signs of working toward independence, and it helps so, so much that I can get her to do parts of treatment processes on her own so I don't have to constantly do everything!

[megara4]

allwaswell Those full evals are key. My DD1 (who is turning 10 on Sunday) was not diagnosed with ASD until she was 8, when we finally went to be seen at a children's psychiatric clinic where they have whole teams that eval your child. Before then, we we saw a developmental NP and she had diagnosed her with the SPD and GAD.

I hope that his full eval goes well and you get some good information out of it.