Post by trixi282 on May 28, 2015 14:16:18 GMT -5
Right about now they're starting Emmeline's (Nugget) surgery to remove the masses from her chest. She's been on blood thinners because of the ECMO machine that is allowing her lungs to rest, therefore a higher risk of bleeding.
It's a tricky and very intense surgery. I know my baby girl is strong and quite a fighter but this is the most nerve wracking and scary thing I've ever had to deal with.
Please pray for her and the team surrounding her this afternoon. Its going to be a long procedure.... Likely 3 hours. I'll update when I have more info.
UPDATE POST-OP:
Surgery is done and it went really well. They were actually finished in about an hour, and then the lead surgeon closed and came to talk to us. After he finished updating us we were able to go see her right away, which we did!
She did great, her BP barely fluctuated during surgery so she tolerated everything like a champ! They are confident they got everything out, but will do a CT scan in a couple of weeks to be sure, and again in 2-3 months for follow up to look at the lungs and be sure there isn't any abnormal tissue growing.
One of the Tech's in the procedure took a picture of the mass (teaching hospital, and they've been following this case since it is a rare defect) and asked if we wanted to see it, so I said yes. It was photographed next to someone's hand, which is hard to gage... So she said it was about the size of a standard computer mouse, both around and height! That's pretty big for a little baby's chest!
They briefly looked at in the mass and found the 7th shunt too, it was inside the mass completely. The mass is now being sent to pathology for testing, its protocol, and will give us piece of mind.
I'm exhausted, and going to take a short nap before dinner.
Thank you for your prayers!!
It's a tricky and very intense surgery. I know my baby girl is strong and quite a fighter but this is the most nerve wracking and scary thing I've ever had to deal with.
Please pray for her and the team surrounding her this afternoon. Its going to be a long procedure.... Likely 3 hours. I'll update when I have more info.
UPDATE POST-OP:
Surgery is done and it went really well. They were actually finished in about an hour, and then the lead surgeon closed and came to talk to us. After he finished updating us we were able to go see her right away, which we did!
She did great, her BP barely fluctuated during surgery so she tolerated everything like a champ! They are confident they got everything out, but will do a CT scan in a couple of weeks to be sure, and again in 2-3 months for follow up to look at the lungs and be sure there isn't any abnormal tissue growing.
One of the Tech's in the procedure took a picture of the mass (teaching hospital, and they've been following this case since it is a rare defect) and asked if we wanted to see it, so I said yes. It was photographed next to someone's hand, which is hard to gage... So she said it was about the size of a standard computer mouse, both around and height! That's pretty big for a little baby's chest!
They briefly looked at in the mass and found the 7th shunt too, it was inside the mass completely. The mass is now being sent to pathology for testing, its protocol, and will give us piece of mind.
I'm exhausted, and going to take a short nap before dinner.
Thank you for your prayers!!