You can definitely come You've been to Tokyo Disney?! So jealous!
Sorry about the back pain
Only Disney Sea. When I studied abroad my host parents told me they wanted to take me to Tokyo Disneyland so I bought tickets to Disney Sea. Then they took me to Disney Sea, haha. I've been once with my husband too. It's a really neat park though. Totally different!
Engaged May 2003 Married June 2005 TTC #1 since October 2014 H-1% morph, low motility, low count Me-.1 AMH levels, low AFC, DOR/POI, perimenopause Foster Care journey begins March 2016-licensed 11/7/16 Foster parents to A & J 1/31/17 www.fertilityfriend.com/home/5525ef
ugh I am SO FRUSTRATED. first, an XP from 3T, with a minor dear diary warning:
*** back in the spring I started testing with my OB (whose practice is associated with my RE) and my Day 3 labs came back good, with an AMH around 4. Not bad for 34 years old, huh? or so I thought. last week I re-did my Day 3 labs with my RE and today my AMH came back at .6. Yeah. I asked the nurse how there could have been such a disconnect in a space of less than six months and her answer was "oh, maybe one of the labs screwed up so we will have to test again next month." um, that's reassuring.
so. aside from the crappy news, is it at all feasible that an AMH would drop from 4 to .6 in just a few months? or did that first lab indeed fuck up? I had my suspicions when my RE did a follicle count a couple months ago and it was 14 or 15. I told him that my initial AMH results had been around 4 and he was like "yeah, no way."
**
also, a special additional rant just for you guys: anyone ever fired their RE because their office can't get their shit together? today when my RE's office called me with the AMH results I was like, "well, I have an SHG on Friday so I can just follow up with the doctor then." and the nurse on the phone was like "you're coming in Friday?" *puts me on hold* "oh, there's a note here saying that we need to reschedule your HSG because we don't schedule them for 8AM. I don't know why someone scheduled you for this time." Me: "...."
other things my RE's office has done in the few months I've been seeing them: a) made me wait 45 minutes for a freaking blood draw, and then said sorry, woops, they forgot about me b) emailed me someone else's prescription by accident (?!?) c) every time I call, promised me a call back and I have to call them instead. This is a top rated fertility clinic in a big city. WTF?
so basically after a lot of back and forth I finally got her to agree to put me on the schedule for tomorrow for the SHG, followed by a consult with the RE to talk about my apparently shitty eggs. tomorrow's going to be a red letter day!
and one last thing/question: I told her I was still spotting a little, and she said that should be fine for the SHG. Thoughts?
emilie Sorry for all that Our RE office has terrible wait times, but other than that, everything has been handled well. If I were you, I would probably consider switching. I think you should feel comfortable and not have to deal with frustrations do to administration issues. But I guess on other hand if I had to deal with delays by switching I might stick around to avoid that part.
Sorry I can't be of help for the SHG question... Other than my clinic wanted it to be between cycle day 5-10 - which I think would be safe to assume that some women would still be spotting if they went day 5-6
Sorry you've had such a frustrating experience, emilie. I would definitely consider switching offices if there other good options in the area. Especially since it seems like there are many things this office is doing that are inconsiderate and/or incorrect.
Post by kawaiikitsune on Oct 14, 2015 22:25:48 GMT -5
Ugh, emilie, I am so sorry your RE's office is causing you so much grief. I agree with PP and would definitely consider switching to a different doctor. That just seems like too many mistakes and a security concern seeing as you have received someone else's prescription via email.
Post by housecarder on Oct 14, 2015 22:27:30 GMT -5
emilie I was spotting during my HSG so I'm assuming that it would be ok for a SHG. Honestly I'd switch practices if they are constantly making mistakes and blowing you off. This is a big step for most couples and a pricey one. You should be 100% comfortable about the care you are receiving.
Post by requiressnacks on Oct 15, 2015 5:09:07 GMT -5
emilie,- that is so frustrating! My REs office is also very highly rated and I find them to be really disorganized and scattered, which is so not my style either. They scheduled my last month monitoring appt on the wrong day, had me go to the wrong office, etc etc. anywho, I'm not frustrated to the point of switching, but I totally understand your concern.
I was spotting for my HSG and it was no issue. I'm not entirely sure how an HSG and an SHG compare, but I hope it works out!
emilie, I would definitely look into your options. If you can find another RE and your current one is willing to send all your info over quickly and you can get in quickly, I would switch right away. At the very least, start the process with a new RE and stick it out with the current one until you're able to get in to the new one.
housecarder, I'm so glad to hear this news. Over achievers indeed!
Engaged May 2003 Married June 2005 TTC #1 since October 2014 H-1% morph, low motility, low count Me-.1 AMH levels, low AFC, DOR/POI, perimenopause Foster Care journey begins March 2016-licensed 11/7/16 Foster parents to A & J 1/31/17 www.fertilityfriend.com/home/5525ef
Thank you for the support all! I'm going to see how things go with the SHG today and then decide from there. I called this morning just to confirm my appointment for later today and it took them 20 minutes to do that! Then 10 minutes after they called my husband's phone number to confirm my appointment. After I had just gotten off a 20 minute phone call to confirm it. I mean, really?
Post by youdontsay on Oct 15, 2015 14:05:13 GMT -5
emilie, I would be annoyed too. The only thing my RE's office does so far is call my cell phone instead of work phone when I'm at work and I've told at least 3 people that my cell phone has no service in my office. I don't think they'll ever get it.
So.....I guess I don't get a WTF appointment with our RE? I'm so confused, annoyed and angry right now. So I'm looking for a little insight, your own .02, etc.
Knowing that I had a BFN that morning I called my insurance company to see how much of our lifetime max we have reached and we are halfway through our lifetime max. So that means, this next cycle is our last cycle.
On Tuesday the RN called back to confirm my BFN and said the RE has a new protocol for us to try (a Lupron protocol?). Apparently, I call them on CD1 and they set up blood work for CD20 to confirm that I O'd naturally, which I told them with the stress I'm under I'll probably have an annovulatory cycle. So they tell me to come in on CD21 for BW, great, thanks. If they confirm O then I decrease the Lupron and add Follistim and Menopur? Then I get another period and go in for monitoring? I've never heard of this before but apparently this is more aggressive than my last protocol. So I approved it and also asked about PGS as well as transferring two embryos the next cycle. They told me my RE's nurse would get in touch with me. They also sent MH for chromosonal BW as well.
Fast forward to today and my RE's nurse calls and tells me that the RE can only find that I had sub-par embryos and that's why the last cycle failed, so why would you put back in crap embryos? Also why did the RE who did the ET tell me I have "awesome" embryos? The nurse tells me that even sub-par embryos have a chance of making it. She was going to check with the RE about PGS and transferring two embryos but my mind is made up in regards to that.
******************Starting a Dear Diary***************** I'm so mad at myself for just coasting along and not asking questions. I never asked for estrogen levels, progresterone levels, never asked about embryo grading, etc. I was being told day after day everything was fine, everything looked great, I'm a textbook patient, blah blah blah and here I am, on IVF Cycle 2. I feel like I wasted my time and the insurance company's money proceeding with the ET. If I only asked the quality of the embryos I could've made the decision to cancel the cycle and start again and maybe I would've had a third chance. ************end of dear diary**************
If anyone has any insight, advice, words of wisdom, I'll take it at this point. I feel a little lost right now and you guys seem to know what's going on with your cycles!
Post by requiressnacks on Oct 15, 2015 14:40:03 GMT -5
youdontsay, I am so sorry that this happened. A big Fuuuuuuck you to the REs office for not giving you this information sooner! Did they provide any explanation as to why they did not tell you sooner?
(I am vaguely recalling that we may go to the same REs office in CT? If so, I concur that they are a hot mess and I haven't even had any procedures done yet.)
youdontsay, I am so sorry that this happened. A big Fuuuuuuck you to the REs office for not giving you this information sooner! Did they provide any explanation as to why they did not tell you sooner?
(I am vaguely recalling that we may go to the same REs office in CT? If so, I concur that they are a hot mess and I haven't even had any procedures done yet.)
Thanks. I asked why they didn't tell me or at least give me a heads up and the nurse said sometimes low-grade embryos end up making healthy babies. So, I get where they're coming from but if I had the choice I would've electively cancelled the cycle.
I think we go to the same RE's office, my life has been a blur lately so I'm drawing a blank!
youdontsay, if I were you, I would insist on a meeting with my RE before I did another round of IVF, even if that means postponing a month. I spent a few minutes looking over you post history, and it sounds like you might have been triggered a little early. It seems surprising to me that you had so few mature eggs at retrieval, given how many you had that were measuring well leading up to that point. I think it is super shitty that your RE was not upfront with you about the quality of your embryos, but honestly, foregoing transfer would not have saved you much money. Most of the $$ is in the retrieval, and they are not lying to you that poorly graded embryos sometimes make healthy babies (and that highly graded ones sometimes don't). The appearance of an embryo is not a very reliable indicator of success.
The new protocol is not necessarily more aggressive, but it can be a better match for some people. Given that an antagonist protocol did not work very well for you, it makes sense that they are switching to a long lupron. Here is a basic calendar that might make the protocol more clear to you: www.advancedfertility.com/sampleivfcalendar.htm. One thing I've learned about long lupron over on 3TIF is that not everyone actually gets a period, and that is okay. My guess is that they will also be adjusting the level of stims and will start you higher this time, based on the fact that they moved it up over the course of your stim cycle.
You might want to hang out on the IVF thread over at 3T too, so you can ask your questions. There is much more knowledge of protocols on that board, and people have had a wide range of experiences. I hope some of this helps, and again, I'm very sorry both that this cycle did not work, and that your RE's office does not seem to have their shit together.
Post by youdontsay on Oct 16, 2015 12:31:41 GMT -5
Thanks so much for all that info mugster. I did get an appointment with the RE on the 30th so hopefully we can all sit down and figure out WTF happened.
I'm just crossing everything that this cycle works, but I really don't have my hopes up.
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