Sorry, late getting to this thread again because of...everything.
I don't get how is downward dog a bad thing? E does that a lot, too. And sometimes he does it now when he's trying to stand. He can't stand for longer than about 3 seconds, but dang it, he's sure trying!
Sorry, late getting to this thread again because of...everything.
I don't get how is downward dog a bad thing? E does that a lot, too. And sometimes he does it now when he's trying to stand. He can't stand for longer than about 3 seconds, but dang it, he's sure trying!
It's not, the Developmental Interventionist is obviously fucking confused. TBH, I'm not super impressed with her so I'm not putting much value on what she says. PT is phenomenal and he said it's how they learn to stand up so I'm sticking with him lol!
The PT sounds great. How did the speech go? I'm going to bring up my concerns to the pedi when we go this month. I'm trying not to worry because he's still young and a boy but it's pretty impossible not to compare him to DS1 who was super verbal at this age.
littlemissmarla, okay that makes more sense, haha. E's been downward-dogging like crazy and really trying hard to stand. He actually stood on his own this morning for about 10 seconds! He usually throws himself off balance because he wants to suck his thumb.
And good news I didn't get to post last week due to all of the stress with my pup: ECI is going to up E to 3 SST (specialized skill training) visits a month from the 1 he is currently at. SST helps him with things like learning to use spoons and recognizing people and saying words. (She's also cool and helps with learning to walk even though he sees a PT for that 3 times a month.) I still wish he had even more services, but this is a start.
Post by littlemissmarla on Mar 17, 2016 19:44:21 GMT -5
I haven't updated in awhile, but we have had abut 3 weeks of services so far and each one has been really great!
Z sees her: Developmental Interventionist M/F @8-9am and W 3-4pm Physical Therapist W 4:30-5:30 Occupational Therapist Th @ 5-6 Speech comes once a month
The DI basically just plays with her and is there with my mom working on getting Zoey to complete tasks. She is getting a lot better at sitting and completing a whole story and is more involved with playing with playdoh. She made a big accomplishment on Wednesday when she made 4 crayon marks on the paper all on her own!
The Physical Therapist has been focusing on working with her on balancing and stepping up and down. He brings a whole bunch of different wooden boards/beams/steps with him and she practices going up ramps and stepping up and down these wooden cube things. She also gets to go on a balance beam and practice stepping over things. Zoey pretty much hates PT but she does have back to back therapy sessions so I don't blame her for being over it.. the PT has some prettying hilarious life stories though.
The OT came last week and then today, she doesn't recognize a lot of sensory issues with Z (which was a relief) she basically thinks she is really independent and doesn't like being directed to do activities by adults. She has been working with her to complete adult lead activities and songs. She also sings some greats songs and hugs and touches Z alot because Z is very not into being pulled on and squeezed, ect unless she is into it or is very comfortable with you. So i think the OT is trying to get her more comfortable in that sense. The OT also thinks Z cries and works herself up because she knows it will = a change in activity so we need to IGNORE the crying behavior if she doesn't want to complete the task and keep going.
Speech said we are doing everything right as far as signing and holding up toys to our face when labeling ..ect- she thinks she is still really young. We have a second hearing test tomorrow which should definitively answer if she has fluid in her ears. We have caught her putting some toys up to her ears a few times, usually toys that make noise .. but at the same time she could be two rooms away and hear the dishwasher opening and she comes running, so who knows.
A really great tip that the OT gave us regarding color. Zoey HATES coloring. She said, imagine this Giant person is coming over to you, making you hold this thing and taking your arm and keeps moving it up and down on a paper - you wouldn't like it either. Another thing about coloring is that it's an open ended activity... Z doesn't know when it will end. Like with blocks, she knows we can build a tower and be done.. but when does coloring end? So, the OT created a song to go with a coloring activity.. She basically sings the song and it goes through each color and she has Z hold each color while she sings and rocks her back and forth (making it fun) and then the next part is "make a mark on your paper" so then she just has her scribble up and down until the next color.. and it goes through Red, Orange, Yellow, Green, Blue and Purple. She has the video on Youtube so I will link it
Post by littlemissmarla on Mar 18, 2016 20:01:28 GMT -5
As usual, it always seems like when things are looking up they go down again lol. We went to the ENT and she had her hearing test done where they put this instrument in her ear to test for fluid.. no fluid was found in either ears! YAY!
but..
our ENT was listening to her and he said at this point the squeaking/breathing noise from the laryngomalacia should have gone away at this point (we really don't even notice it), so he is recommending two things:
First he wants us to see a colleague of his who specializes in pediatric ENT disorders/issues and there is another hearing test to be done to test the neurons in her brain to see if she has hearing loss (which he doesn't thin) or if there is some kind of auditory processing disorder, or to rule anything else out. The kicker is that she will have to be put to sleep but the procedure itself is just some stuff they stick to her head.
While she is under, he wants to have her scoped to see if there are any vascular lesions in her throat, which he says to check for because she seems to have vascular issues (her hemangioma on her back and a birthmark on her forehead), the lesion could just be a growth and they would monitor it.
So, as always.. could be worse. Hoping to get in to see this doctor in the next week and schedule the procedure for when I have my spring break in April because DH is also off.. so we will see. I'm kind of nervous about her going under but i'm sure I will be a wreck when the time comes.
littlemissmarla hugs. It sounds like she is making good process with everything. Sorry she has to have this procedure done though. I'm sure it's scary but hopefully they will get the information they need. Will be thinking of you.
littlemissmarla just now getting to read the updates here. Glad the therapies are going so well!
I understand your worry about Z getting put under for that procedure. E will have to be under for his MRI this coming Friday, and again when he has the eye muscle surgery in April. Mommy does not like this one bit!
The coloring thing makes a lot of sense. E doesn't seem to mind coloring, I think he just doesn't understand the purpose. Coloring is pretty much the only activity his DC does, so he at least has been exposed to it more. (He also tries to eat the crayons at home.)
On Tuesday we should be picking up the MSOs (the little brace devices for his feet) so I'm hoping once we get those on he'll be even more confident with trying to stand and walk. He actually let go of me and stood on his own for about 20 seconds over the weekend before chickening out and sitting down. He's also slowly becoming less robotic in his walking (his strides are kind of exaggerated and not normal).
He's seeing his new PT today, so hopefully she'll give me some good information.
Guys, E's new DC is SO agreeing with him. He's been there only a week now, and on Wednesday he WALKED across the room to me. His two therapists were even amazed at how happy and well he's doing in such a short time. I know part of it is due to his new SMOs (braces for his feet) and his new shoes, but I think the DC is playing a role because they have a lot more low furniture and toys spread out and the teachers are really engaging with him.
He's still struggling with walking at times, but we're so close now that I can feel it!
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