Books for kids with OCD

[mcribster]

can't remember if you were the one asking about pandas/pans? both tics and OCD were 100 percent infection driven for us. A combo of infections including lyme, bartonella, and a major yeast overgrowth and zero good stuff living in the gut. we did not do much in the way of outside services for the behavior which would wax and wane. We did reward "unstuck" behavior and would take away objects if he was too stuck on them.
A few things to try might be magnesium (magna calm is a drink you can give at night, magnesium can help tics) and also a really strong probiotic. renew life is a good one- 15 billion cfu. i would avoid probbiotics containing strep strains like strep thermophilus : en.wikipedia.org/wiki/Streptococcus_thermophilus as they can make tics/ocd worse in some kids with issues. ultimately we needed antibotics to really stop it all.

[Deleted]

mcribster, did he need a stronger antibiotic than usual or multiple doses? I was just curious because a lot of kids with strep get antibiotics already, so the first dose isn't enough? Or it solves the strep, but not the auto immune response to the strep?

[mrsbuttinski]

I vote eval and treatment NOW. There is absolutely no benefit to waiting. And there is no book that can replace competent mental health care.

This is a painful and debilitating situation for her and will likely get worse and harder to manage if left unchecked. Down the line you could be looking at school refusal, agoraphobia, EDs, cutting, etc if she doesn't learn strategies to deal with this even if it is entirely infection driven and it may not be. It's hard to pin this down for certain.

I'm sorry to be so blunt, but this sounds like an emergency to me. Especially with dad leaving soon.

[Deleted]

I am wondering too @trapeze, when is your H is leaving?

I do tend to agree to get as much done before he goes. H traveled for the first 4 years of having kids, and that was what kept me sane was stacking my workload to when he was there, and just doing survival mode when he was gone.

At least call and see if you can get on the books for the psychiatrist which may take a while. I think getting into a counselor that specialized in children could be quicker. You might be able to get to one in 2 weeks, and hopefully get into the psychiatrist within 6 weeks. So maybe you can get that first appointment before he leaves.

[akafred]

I agree that this isn't something to wait on. Anxiety disorders suck but rarely get better without intervention and can spiral quickly.

[mcribster]

Sept 22, 2016 8:46:07 GMT -5 @clarypax said:

mcribster , did he need a stronger antibiotic than usual or multiple doses? I was just curious because a lot of kids with strep get antibiotics already, so the first dose isn't enough? Or it solves the strep, but not the auto immune response to the strep?

yes it wasn't as simple as one antibiotic for a short course. usually you have an immune system with many opportunistic infections going on (genetics+ enviornmental). the key is finding out what those infections are and treating them with someone who understands autoimmune encephalopathy/pandas/pans and also lyme disease. My son was on azithromycin, bactrim (covers lyme, bartonella and a little strep) and mepron (an antimalarial for babesia another tickborne parasite in many ASD kiddos) for over a year. then we did things to reduce the inflammation in the brain (CBD oil which is legal and great for PANS, vitamin E, etc). He is now on herbals that do similar things.

It definitely can not be rectified by 10 days of abx but we had to bust outside the box to figure it all out.

[Life is interesting]

Sept 22, 2016 8:56:10 GMT -5 mrsbuttinski said:

I vote eval and treatment NOW. There is absolutely no benefit to waiting. And there is no book that can replace competent mental health care.

This is a painful and debilitating situation for her and will likely get worse and harder to manage if left unchecked. Down the line you could be looking at school refusal, agoraphobia, EDs, cutting, etc if she doesn't learn strategies to deal with this even if it is entirely infection driven and it may not be. It's hard to pin this down for certain.

I'm sorry to be so blunt, but this sounds like an emergency to me. Especially with dad leaving soon.

This. 100%