Post by chickypoo2468 on Oct 23, 2016 12:20:56 GMT -5
We met our ST on Thursday and I've been stewing over something she said since then. O doesn't speak or make many sounds and still has issues eating and drinking. She had me put a cheerio in one cheek and observed him moving it to the other with his tongue. At the end she said "he uses his tongue well so there's no reason he can't eat. What are you trying to feed him? Maybe he just doesn't like it." We have weekly ST, along with weekly PT, OT, vision, and chiropractic twice a week. He has a lot going on. But still, I felt like it was a big "you're not trying hard enough" to me. I'm trying to give her the benefit of the doubt and hope that once she's actually working with him she will see where the issues are and be able to help but it's just been bugging me. I tried to tell MH but got the usual "uh huh" from him.
I am see why that is upsetting. I wouldn't necessarily unleash on her in anger (not saying you would), but I think a heart to heart or explanation of previous history and your feelings/ frustrations would be helpful for her not only in terms of her adjusting her attitude but also to see if she can be more helpful in her suggestions.
Post by chickypoo2468 on Oct 23, 2016 12:39:52 GMT -5
I definitely will if it continues. I can't imagine her working with him and continuing that opinion, so I need to chill a bit probably. I just hate leaving meetings with the feeing that I'm not doing enough and then having to sit on that til next time. He has been pretty much an anomaly for everyone involved so far though. I was so at a loss for words at the time, so now I'm making a list of the exact problems he's having. Hopefully that helps me to be able to discuss it better and address specific things. When I see her next.
It's hard when people insinuate one isn't doing the most when they don't have a good understanding of what you have previously done or currently doing.
I had a similar issue but our OT realizes DS puts on his best for her so we took videos and she totally understood what happens at home. I suggest video. Also if u move forward and can't stand this one get a new one.
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Treatment:Humira, IVIG, Baby Aspirin, Lovenox/Arixtra, High dose Folic Acid, LIT Treatment Mexico
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Post by mrsbuttinski on Oct 24, 2016 6:46:24 GMT -5
I'm sorry.
Does this SLP have specialized training and extensive experience in dealing with feeding issues? If she doesn't, she may not be qualified to make such a judgement. Moving a Cheerio with his tongue has jack shit to do with swallowing a thin liquid, managing a crunchy texture that won't safely dissolve, dealing with foods that require extensive chewing, etc.
This is where you have a CTJ with the SLP and you tell her how her off-hand comment was a gut punch so she gets her brain in gear before she starts flapping her gums again at the next parent. I would also seek out an SLP who actually has been successful at both speech and feeding which make require a pediatric teaching hospital clinic.
We met our ST on Thursday and I've been stewing over something she said since then. O doesn't speak or make many sounds and still has issues eating and drinking. She had me put a cheerio in one cheek and observed him moving it to the other with his tongue. At the end she said "he uses his tongue well so there's no reason he can't eat. What are you trying to feed him? Maybe he just doesn't like it." We have weekly ST, along with weekly PT, OT, vision, and chiropractic twice a week. He has a lot going on. But still, I felt like it was a big "you're not trying hard enough" to me. I'm trying to give her the benefit of the doubt and hope that once she's actually working with him she will see where the issues are and be able to help but it's just been bugging me. I tried to tell MH but got the usual "uh huh" from him.
Oh you met one of theses gems. I'm surprised she didn't tell you to just wait for her to get hungry, then she will eat.
i take it with a grain of salt and remind myself it's not a personal attack on me, if anything it says more on her assuming someone couldn't figure out to offer their children a variety of food.
i have one of those kids and receive a lot of the "there is no reason he shouldn't be able to". Like I'm holding him back, or won't let him do something.
once a st asked if he could drink out of a straw. I said no. She said "well have you evr offered him one?"
6 m/c, 2 IVF w/CGH,1 IUI, TI
DX: Anovulatory cycles,Implantation Dysfunction, APA
High TNF, Low NK Cells
Treatment:Humira, IVIG, Baby Aspirin, Lovenox/Arixtra, High dose Folic Acid, LIT Treatment Mexico
1 Miracle born Aug 2013 Premature
1 Miracle born March 2015 39 Weeks
Miracles brought to me by Beer Immunology
I also believe that unless a therapist has a child they just don't get it.
Agreed. While I completely understand the anger here, I also recognize the SLPs ignorance. I deeply regret a lot of the things I did a a childless teacher.
Post by chickypoo2468 on Oct 28, 2016 17:12:29 GMT -5
We had a short session today, but she said her main concern was mouth closure and that he doesn't really know what to do with food once he has it. And that he also seems guarded when it comes to things in his mouth. So I feel much better.
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