Post by musicfrk2002 on Nov 6, 2016 0:30:32 GMT -5
Hi, I might be going here now.
I'm musicfrk2002, from the northern IL area. I'm normally over on the June2015 board and OAD when I remember to check in there. My little guy, J, is 17 months old.
About a month or so ago, I began noticing his behaviors were...odd. A bit off. I pushed it aside in my mind and chalked it up to being a FTM until our daycare brought some of the same behaviors up. We ended up going to his pediatrician a few days ago, and were referred to a pediatric neurologist, who is fully booked until February. I did call the EI program as well and should be hearing back from them sometime Monday to get an evaluation set up for him.
This is all new territory for me. I don't even know where to begin.
Post by mrsbuttinski on Nov 6, 2016 7:29:08 GMT -5
Hi and welcome.
It sounds as if you are taking the right steps on behalf of your DS.
What sort of behaviors concern you? Does your pediatrician suspect seizure activity? Does he have any delays in motor or communication? How did he do when your pedi screened with M-CHAT?
Post by chickypoo2468 on Nov 6, 2016 9:20:08 GMT -5
Hey!! My O is a July 15 baby so our kids are the closest in age here. Welcome to the world of appointments made 6 months in advance and unanswered questions to worry about while you wait. I was going to ask the same, what are you all concerned about? Tics? Delays? I don't know who has to do referrals but if you get the chance to see a developmental ped, jump on it. I had never heard of it before but they have been my biggest resource through all of this. The waits are generally long so it wouldn't hurt to ask at your next appt.
Post by musicfrk2002 on Nov 6, 2016 12:13:17 GMT -5
Some of the biggest concerns: -lack of speech. Maybe 1-2 consistent words, if that -spinning/circling. He will spin in circles or circle around a toy or group of toys for 10+ minutes at a time -also with the spinning, obsessed with cars and gears -freaks out with certain things. So far, this list includes the vacuum, my flatiron, wind up toys (just seeing them even), the swiffer, and a hand crank flashlight -watching his feet while he walks/runs. I've witnessed him run into cars three times now -sometimes will walk on his toes or walk in a semi-crouched position -doesn't really interact with other kids (that I've seen)
Post by musicfrk2002 on Nov 6, 2016 12:19:17 GMT -5
mrsbuttinski our pediatrician didn't do an m-chat, but I did the online one two different times (weeks apart) and the result came back as risk for autism both times.
I'd ask for a referral to a developmental pediatrician if you have concerns about ASD. A neurologist can be a good option for a child with seizures, but I would prefer a dev pedi or pediatric hospital developmental clinic that takes a team approach.
I'd ask for a referral to a developmental pediatrician if you have concerns about ASD. A neurologist can be a good option for a child with seizures, but I would prefer a dev pedi or pediatric hospital developmental clinic that takes a team approach.
I'm not even sure we have one of those near me. I've had some local people suggest going either into chicago or up to madison so I need to look into those more
I just got off the phone with Child and Family connections, who does the evaluations here. So, they will be out bright and early next Monday morning to start the intake process, however that works.
Unless you live in/near a major city, you'll probably have to travel a bit to see a good dev pedi.
We were lucky that DS's psychologist who had an all-Aspergers/HFA practice was on Main Street in our small town; we traveled over an hour to see the dev pedi in order to see a great one.
Welcome. I am new here, too, although I'm not exactly new to the game.
My son's eval was with a pediatric neurologist. We did not like her at all, but we got the appropriate diagnosis and got the orders for services that we needed. It didn't really hinder us, I think, not having a dev pedi right off the bat. The wait for the pediatric neuro eval was about 3 months. I am in Houston, TX which has vast resources and I STILL don't know how to find a developmental pediatrician. I have tried. We recently found a new pediatric neurologist with TX Children's Hospital and we love her. The wait list for that eval (the only way to get in the door, even though he's already been evaluated and diagnosed) was 8 months. We would have lost on a lot had we waited that length of time originally.
I guess my point is to get that first eval as fast as you can, however you can, and get in line for other longer waits at the same time.
My son had an EI eval shortly before the autism eval. We got services with EI rolling to fill the gap while we waited for a spot in full-time ABA. He turned 3 right around the time he started ABA so rather than move to the services with the school district we stuck with all private therapy. But I'm glad we had something (EI) during those 4 months we waited for ABA.
Post by chickypoo2468 on Nov 7, 2016 20:18:13 GMT -5
You might be surprised what you have near you. I had never even heard of one until our neurologist referred us, but there is one in the same pediatric group. We go to south bend for ours, it's not in our town but it's under an hour away. I know Luries has different locations in Illinois, so you might have something close to you there. Are you far from Chicago? There's so much there, I would think that there has to be something.
You might be surprised what you have near you. I had never even heard of one until our neurologist referred us, but there is one in the same pediatric group. We go to south bend for ours, it's not in our town but it's under an hour away. I know Luries has different locations in Illinois, so you might have something close to you there. Are you far from Chicago? There's so much there, I would think that there has to be something.
I've been told to check Luries by some local people as well. We are around an hour and a half from Chicago...same with Madison and Milwaukee. So, I'm sure once I dig around enough, I will find the right doctors.
Luries has an outpatient center in Westchester, Arlington Heights, New Lenox and Northbrook, IL. So maybe the initial visit is downtown, but you could see them in the outpatient clinics for future visits. Could maybe decrease your commute by 30 min.
Luries has an outpatient center in Westchester, Arlington Heights, New Lenox and Northbrook, IL. So maybe the initial visit is downtown, but you could see them in the outpatient clinics for future visits. Could maybe decrease your commute by 30 min.
We saw an ophthalmologist, but our initial visit was at the one closest to us.
Luries has an outpatient center in Westchester, Arlington Heights, New Lenox and Northbrook, IL. So maybe the initial visit is downtown, but you could see them in the outpatient clinics for future visits. Could maybe decrease your commute by 30 min.
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