SCQ and ADOS testing

[leroybrown]

Little update here: We self referred to a Child Specialty Clinic through University of Iowa that has rural clinics around the state to help coordinate testing and services. She asked me about the concerning behaviors ( impulsivity, running into crowded areas/parking lots/streets, jumping/hopping/crashing, temper tantrums with a short fuse, tuning us out, violent outbursts, poor transitioning skills, inability to cope with changes, disruptive/interrupting, lack of empathy, fixating on minor details while missing the big picture, obsessing over things) then made a referral to a clinic in Des Moines that could do the testing before the July date we were originally quoted. We are doing the SCQ  this week with her DCP teacher and a positive there will get us a priority spot in Des Moines for hopefully testing in April. The more I read, the more obvious it becomes that there is definitely more to it than ADHD.


And DH still hasn't told his mother.

[KC thepouchh8r]

We didn't tell dhs mother for a good four months after dd was dx. Heck there are still people who don't know.

[mamaturtle]

Yay for get things going sooner than expected!

We didn't tell MIL until more than 1 year after diagnosis. Our reasoning was she was going to blame me for DS's diagnosis. When we told her 1 year after, she still blamed me. DH gets his blaming people from her.

[BostonKisses]

I'm glad you're getting things moving so quickly!

We still haven't told my ILs that we're getting the IU involved for an eval, and will be getting new referrals to a developmental ped very soon. They had a hard enough time accepting the CF dx, and I know how my MIL especially gets with things and she'll be devastated.

[leroybrown]

I told my mother and she was all "be careful of labels, they told your aunt that your cousin would never be able to get a job and they just want your money and the gubmint money for services they won't even provide."

[mack]

Christ on a cracker.

[mrsbuttinski]

We never told DH's mom; she went to her grave thinking DS was the most social of the little boys in her life which says a whole more to how f*cked up they are and how grandmagoggles are even pinker than mommygoggles.

I shared with my parents. Mom was chill but my dad played devil's advocate. As in I was making DS "special ed". It got to the point where I limited my interactions with dad. I tried the "we'll need to agree to disagree" but he wouldn't let it alone. So I withdrew. I'm my parents' only surviving child; it wasn't easy to make this choice but it came down to me not having the bandwidth with all on my plate to spar with those not on Team Auntie. After a couple years, I agreed to visit them in FL with DS if dad didn't try to second guess my parenting choices.

Anyhoo, while in FL, DS wanted to go to KSC. So we all headed there and once past the gates dad was at it. We were in NASA's Rocket Garden; dad looked around and said "DS isn't any different than any boy here, blah, blah, blah..." My first instinct was to head to MCO and home. But I looked around. He had a point. The Rocket Garden was like Autism Central- lots of toe-walking, flapping, monologues, Velcro sneakers and too small Thomas the Tank Engine tees. I said "You're right dad. DS isn't a whole lot different than any of the boys here. But look at them. Do they look like normal, run of the mill boys? Or do they look kind of special?"

He looked around. His face clouded up and he said "Ok, you win. You're right. You're a good mom."

[leroybrown]

lol @ grandgoggles. It's true though. "But she's verbal." Yeah, so? "but she talks to me". Yeah, about what SHE wants, which is Rainbow Dash. Always with the GD Rainbow Dash. Like, hello Tess. There are other ponies. Give Celestia some lovin.

[kmc2]

Mrsbuttinski I love the "too small Thomas the tank tees" DS has one of those. lol yeah I hate people when it comes to this. The blaming, the denial, the crazy accusations, fear of labels, etc. I get where they're all coming from to don't extent, but then again I just don't. My side of the family still has no idea DD has been diagnosed and I haven't spoken to my dad in almost 6 months now because last time we spoke I had to hear about how we're "living off" our autistic son's check every month. Yup, that's it dad, we're livin large here. That was the last straw, I could write a book on the things this guy has done to us over the years.

Leroybrown, clearly you and your DH aren't alone in dealing with peoples ignorance. Glad to hear you're getting all the testing in place for your daughter and I hope everything gets worked out for you guys in the best way possible going forward.

[KC thepouchh8r]

Mar 4, 2015 9:27:26 GMT -5 leroybrown said:

lol @ grandgoggles. It's true though. "But she's verbal." Yeah, so? "but she talks to me". Yeah, about what SHE wants, which is Rainbow Dash. Always with the GD Rainbow Dash. Like, hello Tess. There are other ponies. Give Celestia some lovin.

Dd is obsessed with apple jack. The worst because so hard to find toys/books/clothes around.

[leroybrown]

Mar 4, 2015 10:38:48 GMT -5 kmc2 said:

Mrsbuttinski I love the "too small Thomas the tank tees" DS has one of those. lol yeah I hate people when it comes to this. The blaming, the denial, the crazy accusations, fear of labels, etc. I get where they're all coming from to don't extent, but then again I just don't. My side of the family still has no idea DD has been diagnosed and I haven't spoken to my dad in almost 6 months now because last time we spoke I had to hear about how we're "living off" our autistic son's check every month. Yup, that's it dad, we're livin large here. That was the last straw, I could write a book on the things this guy has done to us over the years.

Leroybrown, clearly you and your DH aren't alone in dealing with peoples ignorance. Glad to hear you're getting all the testing in place for your daughter and I hope everything gets worked out for you guys in the best way possible going forward.

Wut. THE FUCK.

[kmc2]

Yeah that was pretty much my reaction too. lol my dad is bipolar so that explains a lot of his behavior, but he thinks it justifies everything. You can try to call him out on something really hurtful he says or does and then its, "well, I am bipolar..." Yeah that doesn't mean you get a free pass to treat people like shit though.

[BostonKisses]

Mar 2, 2015 15:59:12 GMT -5 leroybrown said:

I told my mother and she was all "be careful of labels, they told your aunt that your cousin would never be able to get a job and they just want your money and the gubmint money for services they won't even provide."

::blinks::

Wow.  That's some heavy duty tinfoilage.