Hello, *Introduction and current pregnancy mentioned*
Apr 9, 2015 15:09:30 GMT -5
Post by db7211 on Apr 9, 2015 15:09:30 GMT -5
Hello,
I lurked on the loss board over on TB shortly after I lost my son last May, but it didn't seem very active at the time. Just found you guys today, seems a lot of people moved over since TB kinda went crazy.
I wanted to tell my story.
I have 2 boys. Big K, who is my sunshine and going to turn 3 May 11th, and Little K, who we lost at 45 days old.
Little K's pregnancy was pretty uneventful until around 24 weeks when I started to notice my belly really hurting. It hurt when I picked up Big K and progressively got worse as the weeks went on. I mentioned it at my 24 week appointment and the doctor theorized it could be the way the baby was positioned and there was not much to worry about. Mentioned it again at 28 weeks and then again at 30 where I explained to the NP that I was having to take Tylenol everyday to help with the pain, and my belly was sooooo tight. She blew me off. A week and a half later I went in for what I thought were BH and was told I was measuring at 38 weeks and that I should schedule an ultrasound to see what was up. Two days later, after we did our maternity shoot, went to the OB office and had the ultrasound. I had polyhydraminos and the baby had hydrops. My husband and I were put on a flight-for-life up to Denver where they tried to stop the contractions and keep him in as long as possible. After 2 days it was obvious he was in distress and they needed to do an emergency c-section to get him out and treat him.
Little K was born on April 13, 2014 at 33 weeks at 6 lbs. He had sooo much fluid everywhere, in his pleural cavity, his tissues were filled with fluid. We were told sometimes they never find a reason for hydrops but that he just needed to get the fluid off of him and then get a chance to heal. We never thought he was not going to pull through. Days turned to weeks. He seemed to get better, then worse, then better. It was so bizarre. After 45 days of trying different ventilators, feeding, not feeding, peeing, not peeing, surgeries, lung biopsies, perforated bowel, we got our answer. The lung biopsy showed this crazy disease the doctors kept hoping it wasn't. Congenital pulmonary lymphangiectasia. A very rare lymphatic disease where the lymphatic vessels in the lungs are permanently dilated leaking fluid into the pulmonary cavity, not allowing his lungs to work, and when the fluid has no where else to go, it seeps into the tissues. No cure. No hope. We had to take Little K off his ventilator and held him until he passed away.
I am hopefully going to start participating here in this board. I'm in a weird place right now, I am 11 weeks pregnant with our 3rd baby, I feel oddly calm. I am anticipating breaking down as his birthday is on Monday, but I don't know.
I am wondering if there is a place to read all of your stories. I really want to know who you are and who your little ones are. I have picked up a few things here and there reading the threads and I am so profoundly sorry to all of you mothers who have lost a little one, or two in some cases.
Anyone feel weird about not being so sad? Like your "forgetting" this ever happened. Sometimes I feel like I should sit down and force myself to remember the pain. Or maybe just go with it for now?
DB7211
I lurked on the loss board over on TB shortly after I lost my son last May, but it didn't seem very active at the time. Just found you guys today, seems a lot of people moved over since TB kinda went crazy.
I wanted to tell my story.
I have 2 boys. Big K, who is my sunshine and going to turn 3 May 11th, and Little K, who we lost at 45 days old.
Little K's pregnancy was pretty uneventful until around 24 weeks when I started to notice my belly really hurting. It hurt when I picked up Big K and progressively got worse as the weeks went on. I mentioned it at my 24 week appointment and the doctor theorized it could be the way the baby was positioned and there was not much to worry about. Mentioned it again at 28 weeks and then again at 30 where I explained to the NP that I was having to take Tylenol everyday to help with the pain, and my belly was sooooo tight. She blew me off. A week and a half later I went in for what I thought were BH and was told I was measuring at 38 weeks and that I should schedule an ultrasound to see what was up. Two days later, after we did our maternity shoot, went to the OB office and had the ultrasound. I had polyhydraminos and the baby had hydrops. My husband and I were put on a flight-for-life up to Denver where they tried to stop the contractions and keep him in as long as possible. After 2 days it was obvious he was in distress and they needed to do an emergency c-section to get him out and treat him.
Little K was born on April 13, 2014 at 33 weeks at 6 lbs. He had sooo much fluid everywhere, in his pleural cavity, his tissues were filled with fluid. We were told sometimes they never find a reason for hydrops but that he just needed to get the fluid off of him and then get a chance to heal. We never thought he was not going to pull through. Days turned to weeks. He seemed to get better, then worse, then better. It was so bizarre. After 45 days of trying different ventilators, feeding, not feeding, peeing, not peeing, surgeries, lung biopsies, perforated bowel, we got our answer. The lung biopsy showed this crazy disease the doctors kept hoping it wasn't. Congenital pulmonary lymphangiectasia. A very rare lymphatic disease where the lymphatic vessels in the lungs are permanently dilated leaking fluid into the pulmonary cavity, not allowing his lungs to work, and when the fluid has no where else to go, it seeps into the tissues. No cure. No hope. We had to take Little K off his ventilator and held him until he passed away.
I am hopefully going to start participating here in this board. I'm in a weird place right now, I am 11 weeks pregnant with our 3rd baby, I feel oddly calm. I am anticipating breaking down as his birthday is on Monday, but I don't know.
I am wondering if there is a place to read all of your stories. I really want to know who you are and who your little ones are. I have picked up a few things here and there reading the threads and I am so profoundly sorry to all of you mothers who have lost a little one, or two in some cases.
Anyone feel weird about not being so sad? Like your "forgetting" this ever happened. Sometimes I feel like I should sit down and force myself to remember the pain. Or maybe just go with it for now?
DB7211
