We finally have a diagnosis for LO. Tracheomalacia which basically means floppy trachea. It's a birth defect that will correct itself as he grows. His floppy trachea causes wheezing and very loud gurgling breathing. When he is asleep he is quiet. It's when he is awake it gets louder. Doc said the gurgling sound is mucus that comes up from the trachea collapsing. He is healthy and gaining weight well so we do nothing but watch it and wait. We saw a pulmonary doctor today. I figured I would share in case someone else has the same thing going on.
I wonder if that's what he has. He's very gurgly. But this started about a month and a half ago. Would it be present longer since its a birth defect?
My lil guys didn't start until 3 1/2 months old. Doc said that's normal because that's when they start getting more active and newborns take shallow breaths so it's not noticeable.
My LO has laryngomalacia. Similar but affects the larynx, not the trachea. It was good to get a diagnosis when she was just a few weeks old because I knew there was something going on. Turns out that although it's relatively common among newborn babies, she has a more moderate to severe case which meant she was a candidate for surgery. She's been gaining weight and hitting her milestones so we are waiting and hoping that she will grow into it. There is still the potential for surgery when she's a year or so old.
My LO has laryngomalacia. Similar but affects the larynx, not the trachea. It was good to get a diagnosis when she was just a few weeks old because I knew there was something going on. Turns out that although it's relatively common among newborn babies, she has a more moderate to severe case which meant she was a candidate for surgery. She's been gaining weight and hitting her milestones so we are waiting and hoping that she will grow into it. There is still the potential for surgery when she's a year or so old.
T and P she does not need surgery. What are her symptoms!
rn536 Thank you! Her symptoms now aren't as bad as they were when she was a newborn. The best way I can describe it is noisy breathing. She sounded like a passing flock of geese. Additionally, it would take her an hour to finish an oz or two. The pediatrician at first and the nurses in the hospital said not to worry that some babies are just noisier than others. When I noticed that the base of the throat (like collar bone area) was retracting when she would take breaths I asked to see a pediatric ENT who scoped her and confirmed the severity of her case. Thankfully she has never had a cyanotic episode where she turns blue/purple, has been gaining weight and hitting her milestones.
We go back in July to the ENT where he will gauge her progress. She does sound SO much better already.
Are you seeking an ENT? Did they give you any indication of when your LO would grow into it?
rn536 Thank you! Her symptoms now aren't as bad as they were when she was a newborn. The best way I can describe it is noisy breathing. She sounded like a passing flock of geese. Additionally, it would take her an hour to finish an oz or two. The pediatrician at first and the nurses in the hospital said not to worry that some babies are just noisier than others. When I noticed that the base of the throat (like collar bone area) was retracting when she would take breaths I asked to see a pediatric ENT who scoped her and confirmed the severity of her case. Thankfully she has never had a cyanotic episode where she turns blue/purple, has been gaining weight and hitting her milestones.
We go back in July to the ENT where he will gauge her progress. She does sound SO much better already.
Are you seeking an ENT? Did they give you any indication of when your LO would grow into it?
Doc did not say a ENT was needed. They said it could talk a year to outgrow! And I was reminded not to go by how he sounds but how he looks. So hard to ignore a rattling wheezing baby but I guess I have to learn.
After reading this thread, I wonder if this is what LO (and DD when she was a baby) has. He's super loud when he breathes, but I don't really worry about him since it doesn't seem to affect him.
I'm nowhere near being a doctor, but I'm going to assume that this is what LO has. It has never concerned his doctor (and I've mentioned it before), and DD's pedi didn't worry about it either (we moved, so she had a different one when she was an infant). I think the only people bothered by his loud breathing are strangers, and I don't care what they think!
It could be. My pedi basically told me not worry. They said don't go by how he sounds go by how he looks. From my Dr. Goggle searches it seems you have to be extra watchful during upper respiratory infections.
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