In need of support...

[akap2010]

Update: thx everyone for the support. This past 2 weeks has been so challenging. We have had more downs then ups. We have Aubrey's 1st post diagnosis visit tomorrow. I'm very anxious.

Aubrey is doing amazing with all the injections and blood checks. She is such a strong girl!

Mommy however is not doing well. I cry everyday and pray for a cure! This is not the life I pictured for my baby girl! I went to see a therapist tonight and it actually helped to talk to someone outside my family and friends.

Please keep us in your thoughts and Prayers as we keep learning a new way of life.




It's been a while since I posted. Life with 2 kids and everything else is crazy!

Anyway. On Wednesday I brought lo to the doctor to have her blood levels checked for her blood disorder. She has been sick and not herself. I mentioned to the nurse how much she has been drinking and peeing. So in less than 10 min of being there lo was diagnosed with type 1 diabetes

We were sent to the hospital immediately!!! There they 100% confirmed it. Her glucose should be 80-120 it was 600!!! So we were admitted and have been here since. Lo is doing better and taking the injections better than me. We will be discharged tomorrow or Sunday.

I am better today.... But I'm still feeling so mad, sad and keep asking why? Why Aubrey? She already has her blood disorder to deal with so why this? Hoping maybe some of you know what I'm dealing with. Looking for any support right now. This has changed our lives forever!!

[annie0714]

I'm sorry you are dealing with this. ((Hugs)) I hope you guys get to go home from the hospital soon.

[caer]

I'm so sorry. (((Hugs))) to you and thoughts and prayers to your LO.

[bmbrinson09]

I'm so sorry you and lo are dealing with this. I hope she gets home from the hospital soon. Maybe ask the nurses if they know of any local parents groups, that way you can meet other families and kids facing similar issues.

[dunners4]

((Hugs)) Ts and Ps to you and LO.

[jammersc]

I am so sorry. (((Hugs))) I don't know exactly what you're going through, but my oldest requires daily injections and I can tell you that that aspect of things does get much easier. In a matter of weeks, injections were no big deal to her and now it's just a regular part of her life. Hoping you all adjust quickly. More (((hugs))).

[mosaicmoscato]

I'm so sorry akap2010, sending you love and keeping your LO in my T&Ps.

[capuleti]

I am so sorry akap2010. I can't even imagine what you are going through. You are resilient and a great mama and your LO sounds so strong. Huge hugs.

[kimmerz424]

akap2010, I'm so sorry. That's a lot do deal with. Kids are resilient, its tougher on us most of the time than it is on them. Its hard to see our LO's sick.

[rosiepeare]

I'm so sorry--I can't begin to imagine how overwhelming that feels. I wanted to offer perhaps a little hope in the form of a student I teach. He's currently a junior; I've known him well since he was a freshman. He has type 1 diabetes and is an incredible educator and advocate. He has gone before politicians in DC, has been recognized as a youth advocate, and just organized a team from our school of over 50 students and faculty for a fundraising walk. In no way does type 1 weaken him--I think it actually strengthens him. He's a phenomenal young man, and I'm proud to know him and be part of his life.

I hope that perhaps gives you a bit of encouragement!

[rosiepeare]

Double post.

[jocountry]

T&P to you and your family. I'd second the PP who suggested a parenting group who works with Type 1 diabetes. And most of all ((hugs))

[hammysmommy]

((((hugs)))

[shellbell]

Hey akap2010 if you need anything, I'm an hour away. You say the word, and I'll do my very best. (((Hugs)))

[sjelwood]

Big ((hugs)) to you and your DD.

[djtippietoes]

I'm really sorry you are dealing with all of this. (((hugs)))

[ciaomama]

I'm so sorry you are dealing with this. ((Hugs)) and let us know if we can do anything to help.

[lowedown]

I'm so sorry. Like rosiepeare I've also seen type 1 success stories. DH's bff is diabetic, and was diagnosed around 5 or 6 I think. It's not always easy, but I've seen it managed well. I'm so sorry.

Are there any support groups in your area? I'm sure it would be so helpful to meet other parents going through the same thing.

[bepandnick]

(((Hugs)))

[Deleted]

akap2010 I'm so sorry you have to deal with this. Although I don't have experience personally, I can only imagine how you're feeling as a parent. I have a friend whose son has diabetes (he's about 7 now) and he is such an inspiration. At that young age, his shots are just a part of his daily life and he is able to tell others about his condition and help educate them. I second looking for a support group. It will help to have other people going through the same thing to talk to. And of course we are here for you, as well. So many hugs for you.

[akap2010]

Thx everyone! There is so much support here!! I have been talking to 2 moms who are friends of friends. Their sons were diagnosed at 3 and 5 and have been dealing with this for over 2 years. It's really helped talking to them. Lo pediatrician also gave me the names of two of her patients moms.

We got home Saturday afternoon. We have been in contact with her endocrinologist multiple times. She's had many highs which they tolerate more than lows. Dh is so much better with it than I am!! He went back to work and I was a mess!!! I quickly made an appointment with my doctor. I need to be in good control of my emotions and mind to take care of lo. So she prescribed anti anxiety meds.

Lo is doing amazing dealing with the blood checking and injections!!! She actually hands me her finger when she sees the poker for her blood glucose. It's 12:19 AM here but I'm up cause we have to check her 1x in the night. So my alarm goes off at midnight every night. She doesn't even move a muscle when I do it while she's sleeping!

My other concern is ds! His life is changing too! He's been really emotional like us. I bought a book off amazon about a brother who has T1 diabetes that the hospital recommended. Hopefully it will help explain it in a 4 yr old version.

I know this will get easier but just don't know when. I am praying every second of the day for a cure in her lifetime. I really appreciate all your support and will try my best to stay in contact and keep you all updated! Xoxo

[vshumway]

((Hugs)). Happy that you guys are home now! Again, no personal experience, but we have had a lot of kids in our school with diabetes. It seems that by the time they are in school, everything about it becomes part of their routine. They know when they have to go to the nurse to check their levels and are perfectly fine with it. We have had kids as young as pre-k tell the teacher that they feel tired and they need to go to the nurse to get checked and have a snack.

I think that your Ds will probably understand better than you think. In my experience, kids are a lot more open to change and differences than adults. They just take it in stride. Usually we explain to students that all of our bodies need different things to get through the day. Your body tells you what it needs, but we need to check your sister to make sure that her body is getting everything it needs. Honestly, at 4, you can probably teach him the things to look out for. Besides you and your husband, he knows her the most. You could say something like "if you notice she is really tired or her eyes look sick, please let a grown up know right away so we can check to see if she needs anything".

Sorry you are going the through this!

[tenniscourt]

((Hugs)) I'm sorry you are going through this. I've dealt with children with type 1 diabetes through the daycare and they really cope with it well. It's a big life change but you guys will be able to manage it, I promise!

[appleoatmeal]

So sorry you're going through this - from your update it sounds like you're doing all the right things. So glad you recognize that taking care of YOU is so important to being able to take care of your DD. Glad you are able to connect with moms going through the same thing, and love the stories that others have shared of others thriving with a similar diagnosis. Best of luck on this journey with your family, keep us updated!

[squirm]

akap2010 how scary! I'm so glad they were able to treat Aubrey and get her the care that she needs. I can only imagine what a huge change it will be to manage her diabetes. Big hugs to you and lo!

[TheAnalyticalMommy]

I'm so sorry you're dealing with this. I know it's really hard - especially at this age.

For what it's worth, my little brother was diagnosed with Type 1 when he was about 7 and later with celiac when he was about 14 or so. He's amazing and has adapted so well.

My knowledge on the subject is obviously very limited since he is the one who was diagnosed and not me, but I would be happy to answer any questions about it if you'd like! I remember the uncertainty about what it all means.

Best of luck to all of you! and stay strong! If you're little one has the same experience my brother had, she will do great!

[junebugz1]

Sending love!

[redcoat]

I'm so sorry, thoughts and prayers for you and and your LO.

[cd7211]

Keeping you in my thoughts and prayers!

[laur]

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