AW Post: My Thyroid?

[britterrss]

Hi y'all. Got my betas back and they are excellent - 218 on the 2nd time (was 70something before). However, my TSH was <0.1...

I got diagnosed with subclinical hypothyroidism and Hashimoto's in February. I am on 50 mcg Levothyroxine, and a month ago my TSH was 0.7. I asked the nurse if I needed to back off the levo... like take half and she said no it was fine. Is that fine? That doesn't seem fine... I'm kind of freaking out and thinking I should cut the dose in half. Or should I get a second opinion?

[virginiaorjohn]

I don't know how to help with this, but I am here to say I'm so happy your betas are up.

Also, I wonder if the ladies on PAIF could help? Hashimoto's is definitely something they are familiar with...

[britterrss]

Jun 11, 2015 11:43:55 GMT -5 virginiaorjohn said:

I don't know how to help with this, but I am here to say I'm so happy your betas are up.

Also, I wonder if the ladies on PAIF could help? Hashimoto's is definitely something they are familiar with...

oh that's a great idea, thank you!

[SubtleGrandeur]

Glad that your betas were good!!! Good luck with the thyroid stuff.

[tkford216]

No idea on the thyroid, but yay for good betas!

[lemoncupcake]

Is your thyroid being managed by your RE? OB? Regular Endocrinologist?

I also have Hashimoto's and my endo has been very carefully managing my dosing/levels as we were gearing up to TTC, during TTC and even more now that I'm pregnant. From what I understand (not a doctor, obv) is that the real risk comes in when your TSH is too high, so being overmedicated might be fine. My initial TSH labs from the day I got my BFP were at .30 and he said that it was "at goal."

Are you feeling any of the typical hyperthyroid symptoms?

[britterrss]

Jun 11, 2015 12:30:05 GMT -5 lemoncupcake said:

Is your thyroid being managed by your RE? OB? Regular Endocrinologist?

I also have Hashimoto's and my endo has been very carefully managing my dosing/levels as we were gearing up to TTC, during TTC and even more now that I'm pregnant. From what I understand (not a doctor, obv) is that the real risk comes in when your TSH is too high, so being overmedicated might be fine. My initial TSH labs from the day I got my BFP were at .30 and he said that it was "at goal."

Are you feeling any of the typical hyperthyroid symptoms?

It's being managed by my OBGYN. It was subclinical before, so I didn't think much of it (my TSH would range 3-5). I plan to move to an endo at this point, but I'm kind of panicking in the meantime. I don't feel sweaty or a racing heart. I have lost weight but only a few pounds and that may be due to metformin. I'm feeling anxious right now, but pretty sure it's because I'm freaking myself out.

[britterrss]

Would it be insensitive to post on PAIF asking for help?

[virginiaorjohn]

Um, I haven't introed over there yet, but I wouldn't think so if I was in their position. I would just introduce yourself, explain that you were never treated by an RE because your TSH levels were normal, and ask if anyone had their TSH levels go down post-BFP and if they have any advice. If I were you, I'd probably say something about being sorry to intrude on their board, but that's because I am very anti-confrontational! I really can't imagine anyone will be mad.

ETA: emojis be cray

[britterrss]

*update*

Called the nurse back and expressed my concerns. She said they never say that too much thyroid can cause a miscarriage - although Dr. Google speculates it - but that if it made me feel more comfortable, I could cut the dose in half and have it rechecked when I go in for the 6 week pg confirmation apt (in 2 weeks).

Thanks for the advice and well wishes.

[Winolicious]

Jun 11, 2015 12:38:12 GMT -5 britterrss said:

Would it be insensitive to post on PAIF asking for help?

I don't think anyone would mind at all!

[apunicorn]

I'm so late to this thread but so glad your betas are good!!!!

[ang32]

Glad your betas are good and that you spoke with your nurse and received reassurance!

[dreadpiratebuttercup]

Yay for good betas!

[mrsg80intn]

lurking from O15... britterrss, I would definitely call the doc and ask for more insight into that number.  I see an endocrinologist monthly for my thyroid checks.  I saw her every 3 months before pregnant, but she's very strict about thyroid checks during pregnancy and where she wants the numbers.  My doc prefers them to be around 1.  I know some docs are different though.  I have hashis and am hypo as well.  Hope that helps.  Please feel free to PM me with questions.

[britterrss]

Jun 12, 2015 9:02:20 GMT -5 mrsg80intn said:

lurking from O15... britterrss, I would definitely call the doc and ask for more insight into that number.  I see an endocrinologist monthly for my thyroid checks.  I saw her every 3 months before pregnant, but she's very strict about thyroid checks during pregnancy and where she wants the numbers.  My doc prefers them to be around 1.  I know some docs are different though.  I have hashis and am hypo as well.  Hope that helps.  Please feel free to PM me with questions.

Thank you! I called back and they said it was OK to cut the dose in half and we'll recheck on the 22nd. I also made an appt with an Endo to make sure it's tightly monitored. I'm hoping that just being a little hyper for a week or 2 won't affect anything (it shouldn't according to my OB).

[mrsg80intn]

Jun 12, 2015 10:18:48 GMT -5 britterrss said:

Jun 12, 2015 9:02:20 GMT -5 mrsg80intn said:

lurking from O15... britterrss, I would definitely call the doc and ask for more insight into that number.  I see an endocrinologist monthly for my thyroid checks.  I saw her every 3 months before pregnant, but she's very strict about thyroid checks during pregnancy and where she wants the numbers.  My doc prefers them to be around 1.  I know some docs are different though.  I have hashis and am hypo as well.  Hope that helps.  Please feel free to PM me with questions.

Thank you! I called back and they said it was OK to cut the dose in half and we'll recheck on the 22nd. I also made an appt with an Endo to make sure it's tightly monitored. I'm hoping that just being a little hyper for a week or 2 won't affect anything (it shouldn't according to my OB).

I'm not a doctor, but based on my understanding hypo is likely more concerning than hyper at this stage b/c baby has no thyroid regulating hormones and you're producing for two.  Also, if you happened to be on any meds (clomid, etc) then it could have been that caused the drop... Mine did that a few times.  I wound up needing a higher dose when I got pg so that I could get closer to 1, but it's been staying there with 88mcg.