Send good thoughts today update in comments

[lo95]

DD has an ultrasound of her head today to investigate why it's over the 100th percentile. The scheduler was sassy about how rare it is to have an u/s done at her age so fingers crossed because if this doesn't work she'll have to be sedated for an MRI. And I'm really hoping this is all worry for nothing to begin with!

[lo95]

Thanks!

[Deleted]

I hope it goes ok.

[mrsmuq]

Mar 3, 2016 9:40:35 GMT -5 lo95 said:

DD has an ultrasound of her head today to investigate why it's over the 100th percentile. The scheduler was sassy about how rare it is to have an u/s done at her age so fingers crossed because if this doesn't work she'll have to be sedated for an MRI. And I'm really hoping this is all worry for nothing to begin with!

Sending you positive thoughts!

Mind if I ask what percentile she is for height/weight?

[vettymama]

Sending positive thoughts!

[younglove316]

Sending positive thoughts your way!

[lo95]

Thanks everyone! Took 2 hours because of wiggling! whew

mrsmuq, Her weight is 75th and her height is lower, but I can't remember.

[cam]

Glad you guys made it through it. Hope the results are favorable. Is she significantly over the 100th percentile? Has she had a notable jump in the percentile comparatively?

[penguin129]

I'm glad you both got through everything ok. I hope you get some answers soon.

[ashiscute]

Glad things went well. Hope you get good results soon!

[lo95]

Mar 3, 2016 15:39:03 GMT -5 cam said:

Glad you guys made it through it. Hope the results are favorable. Is she significantly over the 100th percentile? Has she had a notable jump in the percentile comparatively?

No, no big jump; however, you might have seen me posting on SN about DD's lack of babbling. Well, sort of convoluted backstory, but I was mentioning that information in passing to her PT and her PT commented on her head size. At first I brushed it off, but then realized I never asked what her head percentile was at her well visit the month before with her ped. Well, come to find out when I called it was now over 100 from 97 before. (Not substantially over 100 from what I can tell on the chart.) We had already seen a neurosurgeon in the fall for her plagio and he had causally mentioned we could have an U/S done of her head to check her head size if we were concerned, but he didn't recommend it because she didn't jump in percentiles. Okay, so fast forward back to present day, and I set up a follow-up appointment thinking he would tell me I was stupid for coming back and I'd go back to trying to figure out how to manage my anxiety. I was super surprised when he told me that once the head falls off the chart like that they have to check it out to confirm that it's just a large head- hopefully like my DH- but he was glad I brought her back.

Of course I've researched everything to the hilt and if there is something going on it could explain the communication. BUT the dr said he felt confident she is probably fine so big fingers crossed. I'm going to call and bug them for the scan results tomorrow.

[brachysira]

My son has always had a huge head--99th and over--and then at 9 months, it went off the chart--like super high off. His height is usually 80th or so and his weight is 99th or over...but his head was not near 99th... So we had an ultrasound, and it was fine. And now his head has grown again, but they say there's no need to worry, and it's on course. He's a big child, but his head is very, very big. But DH has a large head too... When we had our scan, the tech was like, why are you here, etc. and seemed sort of surprised that there wasn't more of a reason, but apparently the skull fuses and there is no way to do an ultrasound after about 9-12 months, so the pedi just wanted to get it done while it was an easy procedure. I have googled a lot too...big head=big brain...of course some less pleasant associations too...

[icequeen]

Sending you good thoughts and prayers, lo95!

[lo95]

Mar 3, 2016 21:45:56 GMT -5 brachysira said:

My son has always had a huge head--99th and over--and then at 9 months, it went off the chart--like super high off. His height is usually 80th or so and his weight is 99th or over...but his head was not near 99th... So we had an ultrasound, and it was fine. And now his head has grown again, but they say there's no need to worry, and it's on course. He's a big child, but his head is very, very big. But DH has a large head too... When we had our scan, the tech was like, why are you here, etc. and seemed sort of surprised that there wasn't more of a reason, but apparently the skull fuses and there is no way to do an ultrasound after about 9-12 months, so the pedi just wanted to get it done while it was an easy procedure. I have googled a lot too...big head=big brain...of course some less pleasant associations too...

Thanks for sharing!  I hope it's worry for nothing!! The U/S tech was not super easy yesterday and I got nervous she would tell us we had to do sedation and an MRI or something so I was  glad we could get it done!

[namastebiotches]

Belated luck to you while you await the results!
Keep us updated!

[cam]

Mar 3, 2016 20:52:40 GMT -5 lo95 said:

Mar 3, 2016 15:39:03 GMT -5 cam said:

Glad you guys made it through it. Hope the results are favorable. Is she significantly over the 100th percentile? Has she had a notable jump in the percentile comparatively?

No, no big jump; however, you might have seen me posting on SN about DD's lack of babbling. Well, sort of convoluted backstory, but I was mentioning that information in passing to her PT and her PT commented on her head size. At first I brushed it off, but then realized I never asked what her head percentile was at her well visit the month before with her ped. Well, come to find out when I called it was now over 100 from 97 before. (Not substantially over 100 from what I can tell on the chart.) We had already seen a neurosurgeon in the fall for her plagio and he had causally mentioned we could have an U/S done of her head to check her head size if we were concerned, but he didn't recommend it because she didn't jump in percentiles. Okay, so fast forward back to present day, and I set up a follow-up appointment thinking he would tell me I was stupid for coming back and I'd go back to trying to figure out how to manage my anxiety. I was super surprised when he told me that once the head falls off the chart like that they have to check it out to confirm that it's just a large head- hopefully like my DH- but he was glad I brought her back.

Of course I've researched everything to the hilt and if there is something going on it could explain the communication. BUT the dr said he felt confident she is probably fine so big fingers crossed. I'm going to call and bug them for the scan results tomorrow.

I did recall that you guys have been trying to sort out other issues, so I was trying to mentally fit that in the picture (wow, that sounds nosey when I say it that way, but my brain isn't turned on yet for the day, so I hope you get that my intentions are more sincere than nosey). It sounds like this is one of those things that they rule out just to be safe but odds are good that it is nothing. I hope that is the case for your LO.

[lo95]

cam,Thanks. I was posting on a different board that it's been really tough because I have anxiety and I'm trying to get that to calm down, but at the same time, I have these worries about DD and I can't tell at this point which ones are justified and which ones aren't. Someone on the other board was super nice and told me to try to see the anxiety as a helpful protective thing but yeah...

[cam]

Mar 4, 2016 10:53:32 GMT -5 lo95 said:

cam ,Thanks. I was posting on a different board that it's been really tough because I have anxiety and I'm trying to get that to calm down, but at the same time, I have these worries about DD and I can't tell at this point which ones are justified and which ones aren't. Someone on the other board was super nice and told me to try to see the anxiety as a helpful protective thing but yeah...

I can imagine how hard it is to find that line between following one's gut and recognizing what is anxiety masquerading as gut. I hope you are able to get the anxiety better managed soon so that you don't have all that extra stuff weighing on you. 

[jperry]

Sending you some positive thoughts...keep your faith and stay positive.

I wanted to share our experience too :-) My daughter had her head ultrasound too when she was 7 months old not because it was big but it was quite small. The Neurologist found out that her cerebellum is not yet fully developed and that's the main reason too why she is having GDD (Global Developmental Delay). We were asked to see an Occupational Therapist to assist her with her developments. We were told also that in case there will be no improvement after all the therapy sessions, she might undergo an MRI. So, a after a couple of months, we went back to her neurologist and we got some positive feedback. She had her 2nd head ultrasound and fortunately, there was a great improvement in her cerebellum. Doctor said, no need to undergo MRI. Honestly, I got so worried because if the cerebellum did not develop, there is a big chance that her head will become bigger and might end up having hydrocephalus. We are so very lucky that it didn't happen...that is all because of the prayers and strong faith. 

[lo95]

Thanks so much!

I forgot to update! We found out this week that the ultrasound seemed to look good. She has extra fluid, but the dr wrote in the report that it looks like benign macrocrania. He said it should go down in a few months and we can try to do another ultrasound if the soft spot is open, but if not he's not worried about it. So that was good.

We have an appointment next week for EI to come out. I have a feeling they're going to tell me they can't do much at her age, but when I look at the "Act Early" CDC paper it looks very clear that she has a delay in communication as she doesn't meet a single milestone under the category. Everything else is good.

It's hard because I was at the store today and saw a baby clearly younger than her pointing and saying Dada and then looking at my kiddo and saying baby. I really feel like something is up and I'm not sure when that will come to light fully, but I hope I'm wrong. At this point she doesn't seem to associate a single word with a single person or object. (Ie it's not just that she doesn't say momma but that if we say momma she doesn't look for me, etc etc)
I just wish I could find someone else who has had this particular thing happen with their kid so that I could hear what happened, what to do, etc

[brachysira]

I'm so glad that they are not worried about her head! Our area has "Great Starts Playgroups" which are available to anyone but are specifically for people with kids in Early On, so perhaps there is that or something similar. Local facebook moms' group? Just about everyone I know with a lot of kids has had one in EO, so it's not impossible to find people. July 14 has a good conversation about this going on. Special Needs is a wealthy of information and they know a lot about where to go for additional help, etc. Otherwise, I would stay away from there right now as you will be convinced to worry when it is too soon for that. At our 18 month appt, they said that the minimum was 6 words, so I think you still have some time.

[penguin129]

lo95 LT is for the doc not being concerned. I'm sorry you LO has delays. Keep advocating for her. I hope you are able to get some assistance through your state for a program or something.

[cam]

Glad the findings were not concerning. Good luck with the EI appointment.

[ashiscute]

lo95 does she know her own name? Does she respond to it? Does she try to imitate noises, sounds, or actions? I still think she's on the young side to be saying mama or dada with any meaning so I would not worry about that part. Is she babbling those sounds at all?

I'm glad the ultrasound came back with good news.

[Deleted]

lo95, I'm glad to hear that the ultrasound looked good. Good luck with the EI appointment.

[lo95]

Mar 10, 2016 15:27:55 GMT -5 ashiscute said:

lo95 does she know her own name? Does she respond to it? Does she try to imitate noises, sounds, or actions? I still think she's on the young side to be saying mama or dada with any meaning so I would not worry about that part. Is she babbling those sounds at all?

I'm glad the ultrasound came back with good news.

If you were to say her name, she'd respond to it once for every four or so times you say it. (I've literally tested this like a total crazy.) Otherwise, no imitations of noises or sounds. There is one action she'll do- she'll splash her hands in the water of the tub when DH gets her going. The other odd thing though is that about 2-3 weeks ago she started to do a "m" sound and we got really excited, like okay, this is it! But now it's been almost a week and she doesn't do it anymore. Maybe she'll pick it up again? I just don't know.

[lo95]

Mar 10, 2016 15:11:55 GMT -5 brachysira said:

I'm so glad that they are not worried about her head! Our area has "Great Starts Playgroups" which are available to anyone but are specifically for people with kids in Early On, so perhaps there is that or something similar. Local facebook moms' group? Just about everyone I know with a lot of kids has had one in EO, so it's not impossible to find people. July 14 has a good conversation about

Thanks for all the info! I'm going to go lurk...

[ashiscute]

Mar 10, 2016 19:56:59 GMT -5 lo95 said:

Mar 10, 2016 15:27:55 GMT -5 ashiscute said:

lo95 does she know her own name? Does she respond to it? Does she try to imitate noises, sounds, or actions? I still think she's on the young side to be saying mama or dada with any meaning so I would not worry about that part. Is she babbling those sounds at all?

I'm glad the ultrasound came back with good news.

If you were to say her name, she'd respond to it once for every four or so times you say it. (I've literally tested this like a total crazy.) Otherwise, no imitations of noises or sounds. There is one action she'll do- she'll splash her hands in the water of the tub when DH gets her going. The other odd thing though is that about 2-3 weeks ago she started to do a "m" sound and we got really excited, like okay, this is it! But now it's been almost a week and she doesn't do it anymore. Maybe she'll pick it up again? I just don't know.

I would say 1/4 times mean she knows her name. It can be normal for them to say something and then it disappear while they're working on a new skill. It wasn't always normal for my DD but my DS did this a lot too.

Continue trying to do some basic signs with her like more and milk. Try working on animal sounds. Those tend to be easy to catch onto and count towards sounds and word production.

I hope you get some answers from your evaluation. I'm not sure what they'll do either but IME your child had to have a minor delay in 2 areas or a major delay in 1 area to qualify.

[lo95]

Thanks so much for the ideas!