So I made the trip-(intro)

[theycallmemommy]

Hi. I posted here and there on the TB and after lurking for a few weeks here- I decided to create an account and hopefully join you ladies again.

I was Micelle78 on TB. I have a 4.5 year old with a receptive-expressive speech delay, learned to read(sound out and rote memory) on his own at barely age three despite the delay, visionproblems (extreme farsided, trouble with focus, trouble with teaming, color blind), some gross motor delay that has improved a lot, fine motor delay, sensory seeking- jumping off couch or falling on purpose and sensory avoiding- self imposed limited diet.

He gets private speech, private PT, private vision therapy twice a week, goes to a church preschool twice a week that is playbased. He has come a long way but is still not potty trained and this is a point of manyarguments in this house as well as his behavior when he wants to do stuff and starts jumping off the couch or sneaking to try to figure out how stuff works- dvd player, phone, TV buttons remoTe etc. He reads the words on thebuttons and then tries to understand what it does. He has managed to purchase items off amazon and we had to put a password on stuff just in case he does it when we aren't watching. Even the dvd player has a child lock . Been that way since he was 11 months old.

He is funny too because he narrates his actions. So you can hear what he is about to do before he does it LOL!

you may also remember myesterday posts about my husband. We finally took the steps to get DS evaluated for asd. Basically I made the appointment in November met with the guy in January- evaluation is not until may I can talk about it all later in another thread. Dh is still being an ass about the process but at least we are heading in the direction now and not just talking about it.

[cam]

Glad you made it over here and are moving in the right direction medically. My LO has known how to use the DVD player for I don't know how long now (ours is very basic so I don't think it locks, though now that I say that, he'll probably figure out how to lock it and *I* won't know how to unlock it - lol). He can also use the computer like a pro too. He has video called grandma a few times on the computer. He mostly teaches himself new games or turns on shows/movies, though he has come close to buying things before. We have to change passwords often because he picks them up quickly. MH and I both took apart a lot of electronics as kids, and we both have a gut feeling LO will be like both of us combined and then some on that aspect. Sounds like we are both being kept on our toes in some similar ways.

[numbbears]

Welcome! Wait lists do suck.

[theycallmemommy]

Thanks guys. I like knowing I am not alone in this because out there many of you understand how hard parenting kids that are not like your brother's kids or friends' kids can be and it can feel so isolating.

Yeah DS has had his own tablet since before age 2. He can literally figure out anything. He could turn his tablet on, choose an app, play a game, exit game and choose another before age 2. He has an insane rote memory. Put together a 51 piece puzzle in 20 minutes at 2.75 years old.

Yet we struggle with basic back and forth conversation and this is not something that anyone in my circle (aside from teachers I work with) have dealt with or quite understand how hard communicating with him is and how that impacts every part of his life. He seems really smart but has such a hard time with answering a question about "why or "when" or saying much beyond observations of the current situation we are in. Like he will ask if it is dark outside while we are driving just to make conversation and I will say yes and then he may say he sees lots of cars or tell me that the light is red or green. I know that he wants to say more but doesn't know how. I'm sure many of you can relate to that scenario. I thank God daily that he is a sweet kid that is pretty happy and social. Things are always improving I just get impatient sometimes

[theycallmemommy]

Feb 10, 2015 23:58:05 GMT -5 cam said:

Glad you made it over here and are moving in the right direction medically. My LO has known how to use the DVD player for I don't know how long now (ours is very basic so I don't think it locks, though now that I say that, he'll probably figure out how to lock it and *I* won't know how to unlock it - lol). He can also use the computer like a pro too. He has video called grandma a few times on the computer. He mostly teaches himself new games or turns on shows/movies, though he has come close to buying things before. We have to change passwords often because he picks them up quickly. MH and I both took apart a lot of electronics as kids, and we both have a gut feeling LO will be like both of us combined and then some on that aspect. Sounds like we are both being kept on our toes in some similar ways.

Wow that doesn't sound fun to deal with. DS has changed our I pad to French and deregistered it several times to DHs disappointment. He tried taking apart our laptop and we actually had to order a new set of keys for it. I didn't even know you could replace the keys.

I got some reminder texts on my phone recently complete with icons that d's put onto my phone calendar. A bunch of fakeappointments It was funny and unexpected.

I look forward to hearing more stories about your son. He sounds too cute. Maybe we are raising the next bill gates or Steve jobs.

*llol I am telling dh about your post and he just said that he took a part all of his toys. You learn something every day. I didn't know that about him

[akafred]

Hi and welcome. My kiddo is 5.5 years old and has SPD and ADHD but not ASD. She is also a sensory seeker and avoided (sometimes in the same thing, like she is a seeker of tactile and an avoided as well; same with noises). Last night the ride home was punctuated every 2 minutes or so with a sudden loud screech that you normally might hear from a toddler. She tried to stop, but as soon as she forgot she would do it again and then say she was sorry. I really don't think she was trying to be annoying (though that happens); in this case I could tell she didn't really mean to. I am beginning to suspect she has visual processing and auditory processing delays (which CAPD isn't dx until later, but this seems beyond the norm for her age) as well as some working memory and of course slexecutive function issues, and a dose of perfectionism and anxiety to go with it, though she doesn't really "show" that, but I'm realizing one reason she turns off from new tasks so fast is if she senses she isn't "good" at it. She would rather exhibit ADHD symptoms than let anyone see that she makes mistakes.

[mrsbuttinski]

Feb 11, 2015 1:09:05 GMT -5 theycallmemommy said:

Thanks guys. I like knowing I am not alone in this because out there many of you understand how hard parenting kids that are not like your brother's kids or friends' kids can be and it can feel so isolating.

You are never alone in this. All of us get this on some level. Some of us have lived it.

Yeah DS has had his own tablet since before age 2. He can literally figure out anything. He could turn his tablet on, choose an app, play a game, exit game and choose another before age 2. He has an insane rote memory. Put together a 51 piece puzzle in 20 minutes at 2.75 years old.

DS was like this. When he was about 2 and a half my dad bought one of the early home PCs, DS sat down, booted it up successfully and played Spider Solitaire before we caught him. This was 1995; that thing was expensive and not at all intuitive.

Yet we struggle with basic back and forth conversation and this is not something that anyone in my circle (aside from teachers I work with) have dealt with or quite understand how hard communicating with him is and how that impacts every part of his life. He seems really smart but has such a hard time with answering a question about "why or "when" or saying much beyond observations of the current situation we are in. Like he will ask if it is dark outside while we are driving just to make conversation and I will say yes and then he may say he sees lots of cars or tell me that the light is red or green. I know that he wants to say more but doesn't know how. I'm sure many of you can relate to that scenario. I thank God daily that he is a sweet kid that is pretty happy and social.


DS was like this as a preschooler; he used to talk incessantly. He even did the narration of his solitary play. Most all of his conversation consisted of questions and declarative statements. Conversational volleys and self advocation were IEPs goals right up until graduation. He still sometimes uses a random factiod as an ice-breaker. It earned him the nickname "Captain Random".


Things are always improving I just get impatient sometimes

Same here.

I'm glad you joined us. I miss the rest of the old gang.

[mamaturtle]

Welcome to the board!

How did you know your DS was ordering stuff from amazon?

DS takes selfies and videos of himself on the ipad. He has figured out my password for my ipad and iphone by watching me.

[funchicken]

Hi! Glad you moved over!

[BostonKisses]

Glad you made the jump here!

The waiting really can suck, but I'm glad you're getting evals set up to try and get some more answers.

[cam]

Feb 11, 2015 1:19:19 GMT -5 theycallmemommy said:

Feb 10, 2015 23:58:05 GMT -5 cam said:

Glad you made it over here and are moving in the right direction medically. My LO has known how to use the DVD player for I don't know how long now (ours is very basic so I don't think it locks, though now that I say that, he'll probably figure out how to lock it and *I* won't know how to unlock it - lol). He can also use the computer like a pro too. He has video called grandma a few times on the computer. He mostly teaches himself new games or turns on shows/movies, though he has come close to buying things before. We have to change passwords often because he picks them up quickly. MH and I both took apart a lot of electronics as kids, and we both have a gut feeling LO will be like both of us combined and then some on that aspect. Sounds like we are both being kept on our toes in some similar ways.

Wow that doesn't sound fun to deal with. DS has changed our I pad to French and deregistered it several times to DHs disappointment. He tried taking apart our laptop and we actually had to order a new set of keys for it. I didn't even know you could replace the keys.

I got some reminder texts on my phone recently complete with icons that d's put onto my phone calendar. A bunch of fakeappointments It was funny and unexpected.

I look forward to hearing more stories about your son. He sounds too cute. Maybe we are raising the next bill gates or Steve jobs.

*llol I am telling dh about your post and he just said that he took a part all of his toys. You learn something every day. I didn't know that about him

Our TV menu has been in French a few times.

I didn't think about him trying to take apart a computer; very glad LO was playing in another room when I was putting my old desktop computer back together this past weekend as I am sure that would have given him ideas I hadn't even thought of!

The fake appointments sounds like a funny surprise. As long as real ones aren't deleted or changed, I would be fine with that.

I too enjoy these types of stories, so look forward to more from you also. I hope you are right that the headaches of all the stuff they destroy experimenting now will pay off for them someday. For Christmas, my grandma bought him a toy semi truck that can be taken apart; I told her, "You have no idea how perfect this gift is for him!"

MH was the type to try to improve his toys. I tended to take apart broken things to try to fix them (I fixed our VCR a few times as a kid, etc) or take apart working things to study them (or occasionally switch around the numbers on the phone or something to see how long it would take for someone to notice). LO is right in there with us when we are fixing anything now, or even just changing batteries.

[theycallmemommy]

Feb 11, 2015 10:16:24 GMT -5 mamaturtle said:

Welcome to the board!

How did you know your DS was ordering stuff from amazon?

DS takes selfies and videos of himself on the ipad. He has figured out my password for my ipad and iphone by watching me.

We have anew amazon prime account and our credit card is in the holding area when you order. He was very young and I am sure didn't know what he was doing. nOw though he could probably figure it out.

My husband's hobby is makingvideos of the kids. Like over the top editing and is actually trying to start a videography business on the side. But anyway- he is in the process of piecing together hundreds of video clips that ds has taken and make it a mini movie. It should be funny. His selfies are the best.

DS also has an odd love of our ceiling fan and has taken many interesting pics of it that i swear could be in an art gallery with his ipad. There's so many cool effects/filters he has done with it. Fans are a special interest. I think there are over 200 of just the fan and about 1000 selfies and then quite a few of the cat

[jmski]

Feb 11, 2015 17:54:10 GMT -5 theycallmemommy said:

Feb 11, 2015 10:16:24 GMT -5 mamaturtle said:

Welcome to the board!

How did you know your DS was ordering stuff from amazon?

DS takes selfies and videos of himself on the ipad. He has figured out my password for my ipad and iphone by watching me.

We have anew amazon prime account and our credit card is in the holding area when you order. He was very young and I am sure didn't know what he was doing. nOw though he could probably figure it out.

My husband's hobby is makingvideos of the kids. Like over the top editing and is actually trying to start a videography business on the side. But anyway- he is in the process of piecing together hundreds of video clips that ds has taken and make it a mini movie. It should be funny. His selfies are the best.

DS also has an odd love of our ceiling fan and has taken many interesting pics of it that i swear could be in an art gallery with his ipad. There's so many cool effects/filters he has done with it. Fans are a special interest. I think there are over 200 of just the fan and about 1000 selfies and then quite a few of the cat

My son loves taking iPad pictures of the ceiling fan, his hands, and the kitchen light. They really are like modern art with the filters and coloring.

[mcribster]

Welcome!