Adage's son Xavier passed away

[assemblyreqd]

Don't know if anyone remembers Adrianne and her son X, but he passed away suddenly the other day.....(I excepted, but not unanticipated)

www.kalasfuneralhomes.com/book-of-memories/2820762/Byrd-Xavier/obituary.php

He had Schinzel-Gidion Syndrome. Most children with this do not live beyond 6-7...
ghr.nlm.nih.gov/condition/schinzel-giedion

[assemblyreqd]

Not expected! Sorry

[mrsbuttinski]

Thank you for sharing this information assemblyreqd,

[toastie]

This is chilling. I have no idea why, but he popped into my head a few days ago and I always wondered how he was doing. This makes me so sad.

[cam]

Sorry to hear. Thanks for sharing.

[akafred]

I am so so sorry.

[numbbears]

When I looked up the syndrome, one of the things that popped up was a article about a park adapted for him. I hope all the kids that go there always remember him. So sad.

[Cnon]

So sorry. Hugs for all.


The posted about the syndrome returned an error.

Here's a working link:

ghr.nlm.nih.gov/condition/schinzel-giedion-syndrome