Post by adouces06 on Feb 15, 2017 14:32:05 GMT -5
jcrewgirl I was thinking about you the other day when I noticed we hadn't heard from you. Sending some hugs. I hope you can find a way to see your PCP soon and get things under control.
Can you give me the quick version of what's going on with your DS? I'm sure it's posted somewhere - feel free to link - I hope all goes well.
Cliff notes: we brought him to the eye doctor because his eye was wandering and my sister had that problem when she was little. Turns out he is farsighted and needs glasses, so no huge issue. In doing the exam though, they noticed he had elevated optic nerve pressure. We did an ultrasound on his eyes to confirm what they noted on the exam. Due to the fact he has a large head (macrocephaly) and now this pressure issue, we need to get an MRI to rule out any potential masses in his brain. If the MRI comes back negative, then we need to see a neurologist to figure out what is causing the swelling and most likely have a spinal tab done to measure how much spinal fluid he has (or something like that). He has no other symptoms though that would prompt us to think there is something seriously wrong, so we are hoping we are just going through the motions to rule stuff out.