Post by shehulk723 on Apr 12, 2017 12:42:40 GMT -5
So H lost another 10 lbs in the last two weeks. He's down to 119 at 5'9 :/ his blood work showed his platelets shot up, they were 805 and 400 is normal. She called another doctor about it and they think it's just from his current flare. His BP was also 159 over 143 but she just kinda brushed that off and wasn't concerned about it. They're pushing the paperwork today to start Humira. All my fingers are crossed that insurance doesn't give us any issues with it, because it costs like $3k a month. A nurse is going to come to our house to give him his injections and show him how to do it.
In other news, I need a FFWC I am a shit wife. I keep losing my shit on H and yelling at him. I know he's sick and I feel bad, but with my Chiari I am in SO MUCH PAIN. I've had horrible vertigo for weeks now. I keep throwing up. I am covered in bruises because I fall over randomly because of the chiari and always protect whichever kid I'm holding of course, which means I'm hitting my arms and legs a lot from catching myself. It doesn't help that I haven't been able to take my zoloft for a couple weeks now. I waited until my insurance kicked in, but I was out of refills so the pharmacy was trying to get a refill script from my doctor and it's taking forever. I'm basically stuck in an anxiety attack all the time. And then I blow up on H. Today I like got in his face and screamed and I feel bad about it. I just can't handle this pain and nausea and doing everything.
So many hugs, shehulk723. I can't even begin to imagine how hard things are for you guys right now. I hope the Humira script comes in quickly and helps your H recover.
I don't know how well it may or may not work, but would something like a mother's helper be beneficial to you?
So we decided that we're going to forego counseling right now. They're only available during business hours (wtf.), so we'd have to take time off to see them and with my feelings plus MrRama's lack of PTO (he doesn't get much and he used it all right after our loss), it's just not something we're able to do.
I'm really thankful that we're the kind of people that can work through stuff like this and talk to each other candidly. We both understand the importance of mental health care and making sure each other is well taken care of in our heads as well as our bodies (maybe more than our bodies, tbh, whoops), so it's not the end of the world that we can't go. I do wish that they had called us that first week, though, because I really think we could have used the help to bounce back quicker. Ah, well. C'est la vie.
So many hugs, shehulk723. I can't even begin to imagine how hard things are for you guys right now. I hope the Humira script comes in quickly and helps your H recover.
I don't know how well it may or may not work, but would something like a mother's helper be beneficial to you?
I do like the idea of it, i just get such anxiety at the idea of someone being in my house
So we decided that we're going to forego counseling right now. They're only available during business hours (wtf.), so we'd have to take time off to see them and with my feelings plus MrRama's lack of PTO (he doesn't get much and he used it all right after our loss), it's just not something we're able to do.
I'm really thankful that we're the kind of people that can work through stuff like this and talk to each other candidly. We both understand the importance of mental health care and making sure each other is well taken care of in our heads as well as our bodies (maybe more than our bodies, tbh, whoops), so it's not the end of the world that we can't go. I do wish that they had called us that first week, though, because I really think we could have used the help to bounce back quicker. Ah, well. C'est la vie.
I'm so sorry you're going though this. Have you thought about perhaps using doctors in demand or some other virtual counselor? I'm not sure if you can have the same counselor or not (I assume they'd allow for that?) but I know our insurance offers very low cost visits through telehealth. Your insurance may have info on their site. I imagine they likely offer this. May not be ideal but perhaps can help?
So we decided that we're going to forego counseling right now. They're only available during business hours (wtf.), so we'd have to take time off to see them and with my feelings plus MrRama's lack of PTO (he doesn't get much and he used it all right after our loss), it's just not something we're able to do.
I'm really thankful that we're the kind of people that can work through stuff like this and talk to each other candidly. We both understand the importance of mental health care and making sure each other is well taken care of in our heads as well as our bodies (maybe more than our bodies, tbh, whoops), so it's not the end of the world that we can't go. I do wish that they had called us that first week, though, because I really think we could have used the help to bounce back quicker. Ah, well. C'est la vie.
Sorry they didn't call you guys earlier. Sounds like you two have an amazing relationship though and can really rely on each other for support. That's amazing. Sending you guys all the good vibes.
So we decided that we're going to forego counseling right now. They're only available during business hours (wtf.), so we'd have to take time off to see them and with my feelings plus MrRama's lack of PTO (he doesn't get much and he used it all right after our loss), it's just not something we're able to do.
I'm really thankful that we're the kind of people that can work through stuff like this and talk to each other candidly. We both understand the importance of mental health care and making sure each other is well taken care of in our heads as well as our bodies (maybe more than our bodies, tbh, whoops), so it's not the end of the world that we can't go. I do wish that they had called us that first week, though, because I really think we could have used the help to bounce back quicker. Ah, well. C'est la vie.
I'm so sorry you're going though this. Have you thought about perhaps using doctors in demand or some other virtual counselor? I'm not sure if you can have the same counselor or not (I assume they'd allow for that?) but I know our insurance offers very low cost visits through telehealth. Your insurance may have info on their site. I imagine they likely offer this. May not be ideal but perhaps can help?
She never mentioned any kind of online counseling when she talked to me and I'm pretty skeptical that Kaiser has something like this in-house. They're also the kind of assholes that ONLY insure their own services, so if we chose to go elsewhere, it would be completely OOP.
But I'm really just over it anyway. I'm not interested in getting help for something I'm already dealing with well, kwim? I'm a terrible psych patient to begin with because I don't like being psychoanalyzed, so with the added "done" feelings, I feel like we'd be wasting both our time on it.
shehulk723 so many hugs. Is there anyone that can help care for DH so you can get the treatment you need? And that BP seems wacky. Did they recheck it? Either way they should never blow off high blood pressure. Hugs again!
So DS finally rolled back to belly tonight and I missed it! He was in his crib on his back while I ran his bath water and I come in his room thinking "he looks different." Umm bc he was on his belly looking all proud. Before I could snap a picture he rolled into his back! This month he finally achieved a lot of his motor skills..guess he didn't want PT. Haha.
shehulk723 so many hugs. Is there anyone that can help care for DH so you can get the treatment you need? And that BP seems wacky. Did they recheck it? Either way they should never blow off high blood pressure. Hugs again!
They checked his BP twice and got the same reading both times. It was with an electronic cuff and the Dr basically said she didn't trust that thing. I was wondering if I should take him to the pharmacy and check it again on one of the machines there, but I doubt I could convince him to go anywhere. I don't know about anyone to take care of him. We don't live near his family, most of them are halfway across the country.
shehulk723 so many hugs. Is there anyone that can help care for DH so you can get the treatment you need? And that BP seems wacky. Did they recheck it? Either way they should never blow off high blood pressure. Hugs again!
They checked his BP twice and got the same reading both times. It was with an electronic cuff and the Dr basically said she didn't trust that thing. I was wondering if I should take him to the pharmacy and check it again on one of the machines there, but I doubt I could convince him to go anywhere. I don't know about anyone to take care of him. We don't live near his family, most of them are halfway across the country.
I'm surprised they didn't do it manually if the doctor doesn't trust the cuff. The pharmacy and other stand ones *can* be just as inaccurate, so I wouldn't hoist him out of bed for it. For his next appointment, though, I'd definitely request/insist on a manual reading.
We had a picnic at the park for dinner today. DH and FIL were still working on the house and I needed to get away from that so after I picked them up from daycare we went right to the park second day in a row, but this time I brought food lol. The boy loves the swings!!
shehulk723, I just want to say I am sorry for everything you and your H are going through right now. It sounds like a special kind of hell and honestly, I don't know how you are doing it. You are super tough and I am in awe. I hope the humira helps your H and that you are able in some way to catch a break for yourself. If anyone deserves it, it is you!
What are your thoughts on pacifiers? DS is 9 months and loves his wubbanub. It's his lovey. I've tried to move him towards another object to soothe him, but he wants his wubbanub. He's very vocal, but he's not consistently saying consonants. However, his Dr isn't concerned.
Does you child use a pacifier? At what point do you say no more? How do you get rid of it?
Post by spicysalmonroll on Apr 13, 2017 8:06:02 GMT -5
pbandjelly, DS uses a pacifier for bed/ naps and if he's being cranky in the car seat. He doesn't use it if he's just like sitting on the floor playing in a good mood (I have seen kids who use it 24/7). He's my first so I have no experience with taking it away but I don't really plan to any time soon. I know they should stop by 2, and he still sleeps like dog shit so I'll let him keep it at night until he's closer to 2 or sleeping the night.
What are your thoughts on pacifiers? DS is 9 months and loves his wubbanub. It's his lovey. I've tried to move him towards another object to soothe him, but he wants his wubbanub. He's very vocal, but he's not consistently saying consonants. However, his Dr isn't concerned.
Does you child use a pacifier? At what point do you say no more? How do you get rid of it?
Ds2 is in love with his pacifier. He would keep it in all day long of we let him. I am in no hurry to take it away, because when he's upset it calms him down immediately. When he's awake and happy he usually doesn't have it, but I have been sticking it in his mouth when we have been outside playing this week, because otherwise he just keeps shoving grass in his mouth.
Ds1 didn't really care about a pacifier and stopped using it by himself around 6 months. So no experience taking it away here.
Today I am getting a haircut and having her cut some of ds2's hair. It is out of control and so uneven! He has some originals that are about 5" long. I've been playing with it a lot this week and even gave him a little whale spout with an elastic. I have no idea how the haircut will go - ds1 was 18 months when we took him the first time!
What are your thoughts on pacifiers? DS is 9 months and loves his wubbanub. It's his lovey. I've tried to move him towards another object to soothe him, but he wants his wubbanub. He's very vocal, but he's not consistently saying consonants. However, his Dr isn't concerned.
Does you child use a pacifier? At what point do you say no more? How do you get rid of it?
Ds2 is in love with his pacifier. He would keep it in all day long of we let him. I am in no hurry to take it away, because when he's upset it calms him down immediately. When he's awake and happy he usually doesn't have it, but I have been sticking it in his mouth when we have been outside playing this week, because otherwise he just keeps shoving grass in his mouth.
This is DS exactly. And I've been giving him the pacifier outside too because it keeps things out of his mouth. Some of our friends in the neighborhood are anti pacifier, but I'm conflicted because it works for DS right now.
Post by remylove1011 on Apr 13, 2017 8:44:16 GMT -5
pbandjelly DD takes a pacifier to sleep and when she's fussy before sleep. She was good with us switching out the wubbanub for the next stage pacifier (so she wouldn't chew through it). I think keeping the pacifier of fine as long as it's not in his mouth constantly. We have not started to think about getting rid of it, but my plan was 12-18 months. It does supposedly start to impact teeth at some point so I'd like to get rid of it earlier than later.
Me (30) MH (32) Dx: MFI (low all the things) M. 10/11. TTC Since 01/14 IUI#1-3(Letrozole + Trigger) = BFN Second Opinion. Changed RE's. IVF 09/15 Long Lupron 12R/9M/8F, Transferred 1=BFN. 4 frosties. FET #1 12/15 Transferred 1 (3 still on ice)
Ds2 is in love with his pacifier. He would keep it in all day long of we let him. I am in no hurry to take it away, because when he's upset it calms him down immediately. When he's awake and happy he usually doesn't have it, but I have been sticking it in his mouth when we have been outside playing this week, because otherwise he just keeps shoving grass in his mouth.
This is DS exactly. And I've been giving him the pacifier outside too because it keeps things out of his mouth. Some of our friends in the neighborhood are anti pacifier, but I'm conflicted because it works for DS right now.
We have some family that is anti-paci as well and it's just silly. He is 8 months old for goodness sakes!! Maybe if he's 8 years old and still taking a pacifier all day long, then come talk to me. But, we'll take it away before then. Somehow.
What are your thoughts on pacifiers? DS is 9 months and loves his wubbanub. It's his lovey. I've tried to move him towards another object to soothe him, but he wants his wubbanub. He's very vocal, but he's not consistently saying consonants. However, his Dr isn't concerned.
Does you child use a pacifier? At what point do you say no more? How do you get rid of it?
DD used hers until 9 months but she kind of weaned herself. I would have been willing to let her use it until 2. She only used it for sleep. At this age I wouldn't be worried about the sounds. DD was a late talker but no where near being concerned for speech needs.
What are your thoughts on pacifiers? DS is 9 months and loves his wubbanub. It's his lovey. I've tried to move him towards another object to soothe him, but he wants his wubbanub. He's very vocal, but he's not consistently saying consonants. However, his Dr isn't concerned.
Does you child use a pacifier? At what point do you say no more? How do you get rid of it?
DD used hers until 9 months but she kind of weaned herself. I would have been willing to let her use it until 2. She only used it for sleep. At this age I wouldn't be worried about the sounds. DD was a late talker but no where near being concerned for speech needs.
I was going to let him use it until 2 also unless he gets rid of it first. Then our friends said get rid of it by 1. I think I may let him keep it awhile longer.
Does you child use a pacifier? At what point do you say no more? How do you get rid of it?
I'm going to switch them only being available at bedtime around age 1. Before that? It comforts her and she is still - in my mind - so little. If it brings her peace right now, then so be it.
Post by bocaburger on Apr 13, 2017 19:14:27 GMT -5
shehulk723 You are a great wife. Caregiver strain is real. I don't think anyone in your situation could do any better than you are doing.
pbandjelly My kids have their wubbanubs pretty constantly except when they are playing happily or eating. It doesn't bother me. I Will wait to see if they lose interest as they become more mobile and if not, I will start limiting it to naps/bed.
Then Comes Family, LLC is a participant in the Amazon Services LLC Associates Program, an affiliate advertising
program designed to provide a means for sites to earn advertising fees by advertising and linking to Amazon.com.