Post by trixi282 on Mar 23, 2015 10:21:43 GMT -5
Well, the good news was short lived again. Last week appointments went well, and Nuggets mass was cooperating and remaining steady, Wednesday if even looked like it got a tiny bit smaller!
Well 8am appointment today showed a ton of growth in the mass, doc didn't even do all the calcs before she came in to talk to me. Even I could tell it wasn't good during the U/S. The heart alone looked squished, the sonographer couldn't even get a good look at 4 chambers because the mass was pressing on it too much.
So she said she wanted to do a procedure today.... Its so bad at first glance that she didn't even want to wait for tomorrow. Luckily, H doesn't work Mondays and he came with me this morning to my appt. so he is with me, and J is home with G&G (MIL on spring break). They were able to fit me in for a 12:30 procedure.
Not the way I wanted to spend my day, but kind of glad I don't have to come back tomorrow. And luckily my day was pretty open anyway! Boo.
GRRRRRR!!!!
3/25 UDATE:
I had a F/U with the MFM doc this morning... and the mass is back down again - thankfully!
One of the (many) numbers they do is a ratio of mass size to baby's head circumference, which I've mentioned before. We've had numbers ranging from 0.7 to 4.5 up to this point.
Well, Monday morning that ratio was 6.35 - the "record holder" number I mentioned in comments... Not a good number at all! Monday after the procedure the mass was back down to 1.74, and this morning our ration was a nice small 0.83 
It's the first time we've been below 1 since around 23 weeks or so... and it's only been below a 1.0 two other times total since this whole ordeal started. So I'm very happy with that number today.
Doc does want to do another Fetal Echocardiogram (which I was expecting) and also another Fetal MRI, to get a better look at all 5 shunts. It's really hard to find them all on Ultrasound, so the MRI will help "locate" all of them so when the time comes for baby to be born we have a better idea of how many we're looking for (she thinks one is fully in baby's chest) at time of delivery. So we have those scheduled for Wednesday next week, along with another ultrasound that day because why not! My next appt though is scheduled for Monday next week.
Well 8am appointment today showed a ton of growth in the mass, doc didn't even do all the calcs before she came in to talk to me. Even I could tell it wasn't good during the U/S. The heart alone looked squished, the sonographer couldn't even get a good look at 4 chambers because the mass was pressing on it too much.
So she said she wanted to do a procedure today.... Its so bad at first glance that she didn't even want to wait for tomorrow. Luckily, H doesn't work Mondays and he came with me this morning to my appt. so he is with me, and J is home with G&G (MIL on spring break). They were able to fit me in for a 12:30 procedure.
Not the way I wanted to spend my day, but kind of glad I don't have to come back tomorrow. And luckily my day was pretty open anyway! Boo.
GRRRRRR!!!!
3/25 UDATE:
I had a F/U with the MFM doc this morning... and the mass is back down again - thankfully!
One of the (many) numbers they do is a ratio of mass size to baby's head circumference, which I've mentioned before. We've had numbers ranging from 0.7 to 4.5 up to this point.
Well, Monday morning that ratio was 6.35 - the "record holder" number I mentioned in comments... Not a good number at all!
Monday after the procedure the mass was back down to 1.74, and this morning our ration was a nice small 0.83 
It's the first time we've been below 1 since around 23 weeks or so... and it's only been below a 1.0 two other times total since this whole ordeal started. So I'm very happy with that number today.
Doc does want to do another Fetal Echocardiogram (which I was expecting) and also another Fetal MRI, to get a better look at all 5 shunts. It's really hard to find them all on Ultrasound, so the MRI will help "locate" all of them so when the time comes for baby to be born we have a better idea of how many we're looking for (she thinks one is fully in baby's chest) at time of delivery. So we have those scheduled for Wednesday next week, along with another ultrasound that day because why not! My next appt though is scheduled for Monday next week.
