We saw the ortho today and had some x-rays done. There was some swelling of her joint and decreased range of motion, but everything else was normal. He gave us a referral to a rheumatologist as he was strongly suspicious of rheumatiod arthritis. We had to go to the lab and get a bunch of bloodwork done as well, and thankfully there was an appointment with the rheumatologist right away so she can be seen tomorrow. By mind is spinning but we still need to wait for her lab results and hopefully will know more after her appt tomorrow.
***update***
We saw the rheumatologist yesterday, and it does look like she has juvenile arthritis. So far it is only her knees that are inflammed, and only one knee is symptomatic. She is starting on anti-inflammatories and they will be doing a steriod injection in the affected knee to prevent any joint damage. Due to her age, they will have to sedate her for the steriod injection, and while that is scary, it's better than the long term affects of taking oral meds, so I'm happy it's an option. They don't know what causes it and they don't know why some kids go into remission and others don't. This could be her only episode or she could have it for life, or any variation in between, only time will tell. So for now, we are just taking it a step at a time. She is doing pretty well and doesn't complain much about pain, just limps around like a little old lady, but is otherwise her happy self.
Aw, poor LO! Sending Ts&Ps you get some answers tomorrow. Like PP, I've also never heard of ruhmetoid arthritis in toddlers, my mother has it very bad and I wouldn't wish it upon anyone. Keep us updated when you get a chance.
Maybe I'm ignorant but I've never heard of arthritis in a toddler
There is juvenile rheumatiod arthritis, it's just less common in kids, but I guess girls are at higher risk. From what I've read, some kids will just have a couple flare ups and it will resolve. But about 50% of kids with it will carry it into adulthood and it can be life-long. I'm trying not to keep googling it and just wait and see what the specialist says tomorrow.
Thinking of you and your daughter, and hoping you get some clearer answers from the rheumatologist. It's great they were able to get you in so quickly!
My cousin has JRA, and it has gotten better as she's gotten older although she still gets occasional flares in college. She's extremely active and is a true outdoor kid (majoring in geology and hiking all over the place digging up rocks) - she definitely treats her diagnosis like it's NBD, even if it sometimes is
Thinking of you and your daughter, and hoping you get some clearer answers from the rheumatologist. It's great they were able to get you in so quickly!
My cousin has JRA, and it has gotten better as she's gotten older although she still gets occasional flares in college. She's extremely active and is a true outdoor kid (majoring in geology and hiking all over the place digging up rocks) - she definitely treats her diagnosis like it's NBD, even if it sometimes is
Thank you for this. It is encouraging to hear that even if she has it for life, she can still have a good outcome and not be limited by it.
happymama, I'm sorry to hear about your DD's diagnosis. Sending you positive thoughts but it sounds like you have a good plan in place and I hope she doesn't flare up again anytime soon if at all!
I'm so glad you got a diagnosis and treatment plan so quickly. I know it wasn't what you were hoping to hear, but it sounds like your daughter's doctors will be great. I'll be thinking of you and your daughter.
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