Things around here have been good... E is doing well and still moving eight along. I'm honestly trying to remember my last update... It was long, but I can't remember where I left off, haha!
She got her central line out (no more IV lines), so she's on oral (thru her feeding tube) medication who h is still slowly being weaned. And she graduated from cpap to a high flow oxygen nose cannula. They have started to wean her from that already too!
Sometime soon we'll start non-nutritive feeds to get her starting to suck, swallow, breathe, to prepare for eating. Then she'll slowly work up to full feeds orally. We still have quite awhile left in NICU, but she's doing great!
My work/leave/benefits on the other hand are a hot mess, and I'm still trying to figure out what I'm going to do to try and extend my leave after it runs out and she's potentially still in the hospital.
Thanks for updating! So glad she's doing well and it sounds like you are hanging in there ok, minus the leave debacle. Fingers crossed it works out soon!
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