Update on Little Miss E
Jul 8, 2015 21:18:38 GMT -5
Post by trixi282 on Jul 8, 2015 21:18:38 GMT -5
Since my call-out last week, my little angel has already had some more excitement in her world....
Last week she had been put on high-flow oxygen which is blended to humidify it, and was doing really well breathing on her own without the forced cpap air. Over the weekend (sunday) they changed her to low-flow oxygen, which is just a little breeze in her nose of straight oxygen from the wall. She's doing so well that they've already started weaning that as well!
Her meds are being lowered every 2 days and she's getting so close to being almost med free. She is almost off all of her pain meds and will then start weaning from methadone which was given to help ease the withdrawal symptoms from her sedation and pain meds.
As for feeding, she still has her feeding tube, and she's now up to 3oz every 3 hours.... yesterday though, on her 6 week birthday, she had a huge milestone and she took her first bottle!! They started with a small amount, and she took 20ml (just over 1/2oz) which is great for her. She had serious oral aversions when Occupational Therapy started working with her, and although she'll take a pacifier occasionally, she still doesn't love it. So to take a bottle and to eat that much is great! Today they tried again and she took 25ml with ease. She fell into a really nice feeding pattern fairly quickly. They're pacing her so she can learn 'suck, swallow, breathe' which she is still learning to do. They want her to feel in control, not feel forced.
I'm so proud at how far she's come in just 6 weeks. Before she was born I didn't know what we had in store for us, and couldn't imagine how long we'd be here... if it would be a few weeks or a few months. But now seeing where she was and how far she's come, I'm so impressed. She was really sick when she was born, and I can't believe how much she's dealt with already in her short life!
Last week she had been put on high-flow oxygen which is blended to humidify it, and was doing really well breathing on her own without the forced cpap air. Over the weekend (sunday) they changed her to low-flow oxygen, which is just a little breeze in her nose of straight oxygen from the wall. She's doing so well that they've already started weaning that as well!
Her meds are being lowered every 2 days and she's getting so close to being almost med free. She is almost off all of her pain meds and will then start weaning from methadone which was given to help ease the withdrawal symptoms from her sedation and pain meds.
As for feeding, she still has her feeding tube, and she's now up to 3oz every 3 hours.... yesterday though, on her 6 week birthday, she had a huge milestone and she took her first bottle!! They started with a small amount, and she took 20ml (just over 1/2oz) which is great for her. She had serious oral aversions when Occupational Therapy started working with her, and although she'll take a pacifier occasionally, she still doesn't love it. So to take a bottle and to eat that much is great! Today they tried again and she took 25ml with ease. She fell into a really nice feeding pattern fairly quickly. They're pacing her so she can learn 'suck, swallow, breathe' which she is still learning to do. They want her to feel in control, not feel forced.
I'm so proud at how far she's come in just 6 weeks. Before she was born I didn't know what we had in store for us, and couldn't imagine how long we'd be here... if it would be a few weeks or a few months. But now seeing where she was and how far she's come, I'm so impressed. She was really sick when she was born, and I can't believe how much she's dealt with already in her short life!
you have a strong little girl- seems she takes after her mama!
