Thyroid Check-in (Hyper/Hypo) or Q's

[penguin129]

Hi ladies! It's been a while since we did a check-in for hyper or hypothyroidism. If you have any questions about hyper or hypothyroidism check this thread out too.

Do you have hyper/hypo?:

How long have you been treated for hyper/hypo?:

What's your TSH at?:

Rants or Raves:

How are you feeling?:

GTKY: What was it that made you get tested to see if you had a Thyroid condition?

[penguin129]

Do you have hyper/hypo?:

How long have you been treated for hyper/hypo?: I was diagnosed in September of 2014, so 1 year and 3 monthsish

What's your TSH at?: 8.8

Rants or Raves: Before the PA I'm seeing lowered my dose a month ago my levels were 0.38. Now after taking the new dose for a month my levels are the highest they've been. I have no idea what to do. Everything I read is saying it is not a good idea to TTC with levels above 2. What would you do?

How are you feeling?: Meh. I have no idea what to feel right now. I never know what is Thyroid related or toddler related pertaining to sleepiness, etc.

GTKY: What was it that made you get tested to see if you had a Thyroid condition? Right after DD turned 1 I finally decided to get seen because I was suffering from depression. I thought I had PPD. The doctor suggested checking my Thyroid and here I am.

[Quinstar]

Do you have hyper/hypo?:
I just started a treatment for Hypo, so I think I can go here.

How long have you been treated for hyper/hypo?: 10/15/15

What's your TSH at?: 5.22

Rants or Raves: I really know very little about all of this stuff, and since we started TTC, I don't know what the medication is changing or if it's my body doing strange things.

Doctor started me off on 75MCG of Levothyroxin. I'm supposed to go back in this month to test again.

The first week was great, it put down my appetite and I had more energy. Then my face broke out horribly, and I started loosing hair by the fist full, and my energy dropped and appetite came back.

How are you feeling?: Tired. And mad that I'm gaining/barely maintaining weight.

GTKY: What was it that made you get tested to see if you had a Thyroid condition?

They've been testing my blood for it every time I go to the doctor because of my family history and my symptoms. It's been just on the line, and they haven't wanted to do anything about it. Finally it got high enough the doctor decided that since I've been gaining quite a bit of weight she wanted to try and get it in check.

[jubilantsquirrel]

Do you have hyper/hypo?: Hypo

How long have you been treated for hyper/hypo?: March 2012

What's your TSH at?: I forget, I'll have to log into the portal to check. I know it was really low though.

Rants or Raves: After my last draw my dose was lowered because I moved into hypo territory, I went down to 100mcg from 125mcg. But I don't think 100mcg is enough, I think I should be taking 112mcg. Guess I'll find out soon enough.

How are you feeling?: Tired, as usual.

GTKY: What was it that made you get tested to see if you had a Thyroid condition?
I actually just went in for a physical. I hadn't had one in a few years and I was so beyond exhausted all the time that I figured it would be a good idea to get checked out.

[notagoddess]

Hope this is OK to ask here...

I've seen that the ideal TSH range for TTC is 1-2. But the "normal" range given by my labs has been much wider, about 0.3-4.5.

Is there anything that should be done if TSH levels are normal, but not in the ideal TTC range?

[jubilantsquirrel]

penguin129, I'm not a doctor and I won't tell you to go ahead and continue TTC, but when I got pregnant with DS my TSH levels were higher than a 2. Not as high as yours though, if I remember correctly they were around 5. Once I found out I was pregnant I had my levels checked ASAP and my dose was adjusted (as it was several times through out the entire pregnancy). I would consult with your provider and see what they say.

[penguin129]

Dec 9, 2015 17:32:10 GMT -5 notagoddess said:

Hope this is OK to ask here...

I've seen that the ideal TSH range for TTC is 1-2. But the "normal" range given by my labs has been much wider, about 0.3-4.5.

Is there anything that should be done if TSH levels are normal, but not in the ideal TTC range?

It is fine to ask that here. I was told by my Physician's Assistant that it was ok for us to TTC with my numbers when I tested last at 0.38 even though the information I've read states the same. I would just say make sure when you do get pregnant that you have your OB check your levels. The baby gets all their TSH from the mom in the first trimester so it could cause issues if you don't have enough for yourself. I hope that makes sense. Do you know what your level is?

[penguin129]

Dec 9, 2015 17:36:45 GMT -5 jubilantsquirrel said:

penguin129 , I'm not a doctor and I won't tell you to go ahead and continue TTC, but when I got pregnant with DS my TSH levels were higher than a 2. Not as high as yours though, if I remember correctly they were around 5. Once I found out I was pregnant I had my levels checked ASAP and my dose was adjusted (as it was several times through out the entire pregnancy). I would consult with your provider and see what they say.

Thanks! I put a call into them today after I got a message from them but they didn't call me back. I'll try them again tomorrow. I was thinking since I am being monitored it might be ok...

[notagoddess]

Dec 9, 2015 17:41:39 GMT -5 penguin129 said:

Dec 9, 2015 17:32:10 GMT -5 notagoddess said:

Hope this is OK to ask here...

I've seen that the ideal TSH range for TTC is 1-2. But the "normal" range given by my labs has been much wider, about 0.3-4.5.

Is there anything that should be done if TSH levels are normal, but not in the ideal TTC range?

It is fine to ask that here. I was told by my Physician's Assistant that it was ok for us to TTC with my numbers when I tested last at 0.38 even though the information I've read states the same. I would just say make sure when you do get pregnant that you have your OB check your levels. The baby gets all their TSH from the mom in the first trimester so it could cause issues if you don't have enough for yourself. I hope that makes sense. Do you know what your level is?

About 5 years ago I was diagnosed with subclinical hypothyroidism. I think my levels were about 3.5, but I don't remember 100%. My doctor treated it because of concerns it was contributing to my depression at the time. I've been fine since and I feel pretty healthy overall. My last two levels were 0.94 last week and 2.12 before than (a while ago). Those seem good, but not within the ideal TTC range. Could it be making a difference?

[Deleted]

Do you have hyper/hypo?: I'm hypo

How long have you been treated for hyper/hypo?: I began treatment this time at the end of may 2015. At one point about 5yrs ago my thyroid levels were high and I was put on synthroid, but I was taken off again within a few months. This time is permanent.

What's your TSH at?: pre synthroid I was testing over 30. I'm now around a 3, or so.

Rants or Raves: I hate having to wait to eat breakfast, especially on days when DS lets me sleep in. Some mornings I am so hungry and cranky, I'm not sure how DH deals with me.

How are you feeling?: I'm feeling pretty good. Having trouble with weight maintenance/loss, but I'm not putting much work in either. My short term memory is back though, so that is a huge plus

GTKY: What was it that made you get tested to see if you had a Thyroid condition?
I went to my dr due to having spotting for 4 weeks followed by very heavy bleeding for 4 weeks. This was after going 3 months with no period. Thyroid testing was one of the first things the dr did, along with other blood work. She called me as soon as she had results, and had me come right in for an appointment for a prescription.

[penguin129]

notagoddess I can't say for sure. If it were me I wouldn't be worried about it at 2.12 because it is so close to 2. That being said, I'm not a doctor and am still figuring out this whole hypothyroid while TTC thing myself. I wasn't diagnosed until DD turned 1 and didn't have to deal with this while we were TTC her.

[notagoddess]

penguin129, I hope you're able to get things under control quickly. Can you schedule an appointment now for January with an endocrinologist?

[penguin129]

Dec 9, 2015 19:12:47 GMT -5 notagoddess said:

penguin129 , I hope you're able to get things under control quickly. Can you schedule an appointment now for January with an endocrinologist?

Thank you! I think the insurance I am going to get works off referrals. I may just be finding a new family doctor to run a full thyroid panel including T3/T4 and antibodies so I can get a clearer picture and then see what they recommend for me to do.

[woodenshoes]

HI I am GKU dirty lurker. I found one of these threads from awhile ago and found it useful. I hope it is okay that I post to this thread.

Do you have hyper/hypo?: hypo

How long have you been treated for hyper/hypo?: I have been treated for thyroid problems pretty much my whole life. There was a brief time when I was in 5th grade where I was hyperthyroid. Since then I have been hypothyroid.

What's your TSH at?: I just got it tested a few weeks ago and it was at 3.85. At the end of August it was at a 2.6. Until these last two draws, my TSH is almost always in the 1-2 range.

Rants or Raves: I started having shorter cycles in August when my number was at a 2.6. The last few cycles I have been lucky if I make it to 10 dpo before AF starts. My doctor and I are trying to figure out what is causing that. I am thinking stress that I have had has been a factor in everything. We also are going to test my progesterone and prolactin this cycle to see if it is something else.

How are you feeling?: Lately, I have been feeling tired. I also have gained weight. I eat healthy for lunch, but struggle with eating healthy and resisting snacking at night.

GTKY: What was it that made you get tested to see if you had a Thyroid condition? I requested that my levels get checked again last month because I am sick of having a shorter luteal phase. While reading some of the threads on GKU I realized my thryoid levels could potentially be causing it and asked that my levels get checked again. Also, I was shedding clumps of hair in the shower. I do shed hair a lot, but not in clumps, so that made me wonder if my TSH levels were getting higher.

[rungirlrun]

Dec 9, 2015 18:42:04 GMT -5 notagoddess said:

Dec 9, 2015 17:41:39 GMT -5 penguin129 said:

It is fine to ask that here. I was told by my Physician's Assistant that it was ok for us to TTC with my numbers when I tested last at 0.38 even though the information I've read states the same. I would just say make sure when you do get pregnant that you have your OB check your levels. The baby gets all their TSH from the mom in the first trimester so it could cause issues if you don't have enough for yourself. I hope that makes sense. Do you know what your level is?

About 5 years ago I was diagnosed with subclinical hypothyroidism. I think my levels were about 3.5, but I don't remember 100%. My doctor treated it because of concerns it was contributing to my depression at the time. I've been fine since and I feel pretty healthy overall. My last two levels were 0.94 last week and 2.12 before than (a while ago). Those seem good, but not within the ideal TTC range. Could it be making a difference?

Lurking but wanted to weigh in bc I had a similar worry in October. My levels were tested, and I was 2.19. This is above 2 so of course I start freaking out. I spoke to my dr and she said for pregnancy, being below 2.5 is ideal so I had nothing to worry about. And a few ladies on here told me to relax but still monitor regularly for peace of mind. So I'm not a dr and don't know details on your fertility, but it didn't affect my fertility in any drastic fashion so hopefully you're in the same boat :-)

[emilie]

sorry for the fluctuations penguin129. are you able to see an endocrinologist? they might be able to tweak your meds more specifically and monitor you more closely to get you stable.

notagoddess I know it's subjective, but my RE and endocrinologist want me to be between 1 and 2 for TTC. I also feel a lot better when I'm in this range. If you are TTC, it's worth talking to your GP or OB about doing a full thyroid panel to see if your thyroid hormones in addition to TSH are stable.

Do you have hyper/hypo?: Hypo/Hashimoto's

How long have you been treated for hyper/hypo?: since fall 2014

What's your TSH at?: at last check, 1.8

Rants or Raves: I forgot to take my meds yesterday and I am so freaking tired today! Also, can my hair grow back already? Thanks.

How are you feeling?: See above.

GTKY: What was it that made you get tested to see if you had a Thyroid condition? My mom has Hashimoto's and it's genetic. I started getting tested at my annual physical about 5 years ago and I was in the "subclinical" range for that time (TSH in the 3-4 range). I felt fine and wasn't TTC so I didn't want to take meds. Once I started TTC and didn't get pregnant right away, I figured I would test again and discovered that my TSH was 6-something, so they put me on Synthroid.

[BabyStandish]

Do you have hyper/hypo?: hypo

How long have you been treated for hyper/hypo?: Diagnosed in May or June of 2014.

What's your TSH at?: 7

Rants or Raves: My levels also went up recently. Ummm what??? This was after I thought I might get to drop to a lower medication so it was frustrating hearing that I'm back up to a 7. They raised me and I go back in 2 months to see where my levels are at.

How are you feeling?: Okay I guess. I don't really sleep. LO has been sick a cold the past week so it's been rough. I don't feel rested.

GTKY: What was it that made you get tested to see if you had a Thyroid condition? I found out when I did bloodwork at my first appointment with my ob when I was pregnant @ 9weeks